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A Miracle

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  • A Miracle

    Did we move here to have my bladder taken care of or did we move here for Allen's job?

    I can now look at this whole thing in a positive light rather than my regular negative, pessimistic self.

    Well, I've had lots of time to think about this and it goes several ways. I was in love with him and willing to move anywhere he could find work, so we came to the Boston, MA Area. Allen built up some great experience here in MA even though he and 25 other of his co-workers including his own boss were laid off in January. The Company went down after being taken over by a larger company in California. He lost his job, they were about to fire me at my job, I went out on disability, and had the pain and agony of IC taken away from me with my neobladder.

    Before I moved here I met a wonderful woman named Molly. She has been with me every step of the way when my own mother couln't be here. It's been one long heck of a road and I would not have been able to do it without her guidance, support, love, and encouragement. Through Molly, I met 1 of 5 doctors in this whole country that can do these Neobladders.

    Now, as my Husband still can't find work, it will be time for us to move back home with our families. I never wanted to leave Rochester, NY........but as they say...

    "Everything in life happens for a reason"

    When my LTD rus out, we have no ties here so it looks pretty logical to think about going back home to Rochester, NY and financially we have no choice. I am ready to stay here if that's the way it works, but I am more than ready to go home and start a family with our two families close by.

    1 out of 5 doctors in the Unite States of America and through Molly and Allen coming here to work, I landed into this doctor's incredicble healing hands.

    There's not much more to say but Thank You!

    Kara <img src="graemlins/angel.gif" border="0" alt="[angel]" />
    "Never take, I don't know how to help you as an answer."

    [email protected]


  • #2
    Kara, I talked to you one night on the chat room right after your surgery. Hope you are feeling better. It does seem as though everything comes at once doesn't it? Hope your surgery was successful and you start to get your life back.


    • #3
      Hi Kara,
      I am new to the ICN. Would you please describe in more detail what a neobladder exactly is? Thank you in advance and wishes of continued success!



      • #4
        Hi Torri,
        I too would like to know what you had done. I am really frustrated about this Ic thing. Hope all is going well, sounds like it is.


        • #5
          Sorry about that, I mean Kara! Lanana


          • #6
            Dear, Dear Kara -
            WONDERFUL that things are going so well.....
            after so many obstacles, and so much pain....I will keep you in my thoughts and prayers for
            your Hubby's job interview!!
            sending many HUGS, Lauren [img]smile.gif[/img] <img src="graemlins/hi.gif" border="0" alt="[hi]" /> <img src="graemlins/angel.gif" border="0" alt="[angel]" />

            "May the road rise up to meet you,
            may the wind be at your back....
            and may God hold you in the hollow
            of His hand."
            Gaelic Blessing


            • #7
              Who is your doctor? I recently moved to the Boston area and have been looking for a decent uro for some time.



              • #8
                "The neobladder, also known as 'continent orthotopic urinary reconstruction', appeals especially to younger patients who wish to avoid a stoma on the abdomen and/or wearing an ostomy bag. In many cases those with neobladders learn how to completely empty their bladders and do not require intermittent catheterization. However, this is a learned response and not a guarantee. In cases where 100% continence is not realized, regular or intermittent self-catheterization may be necessary."

                I have the Neobladder and can answer any questions you may have.

                My doctor is Dr. Emanuel Friedman of Metrowest Urology in Natick, MA. He's 1 out of 5 doctors in the country that do the Neobladder.

                "Never take, I don't know how to help you as an answer."

                [email protected]