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  • Judith
    replied
    Kara, sorry it taken me so long before answering. I had a kidney infection and just got out of the hospital today. Because your new bladder is now bowel, technically you are having bowel spams. As I undersand it. When I first had my surgery I used to get them all the time and there are lots of drugs out there for bowel spasms. You may want to ask the new uro about Bentyl,or even trying Immodium. I do however think that before self treating, since your surgery is still new, you need to get professional advice.Hope you are feeling better. Judith

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  • Mosley_19
    replied
    Hey Kara~

    I was reading your post and you said you were in between docs and having some problems with your bladder being removed. I think you had the doc appoint. today right ? Well, how did it go ? I hope you are feeling allright today. Your always helping everyone else out all the time and being a great support to others. I wanted to show the kindess you have showed me many of times. If there is anything I can do for you please let me know. Till then I will keep you in my thoughts. Take care and feel better. Hugs <img src="graemlins/grouphug.gif" border="0" alt="[grouphug]" />


    ~Alison <img src="graemlins/angel.gif" border="0" alt="[angel]" />

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  • Kara
    replied
    Jo Ellen,

    I will ask my doc about that when I see him. I never had IBS, but with them cutting a foot of my intestines off to make a new bladder, I may have developed it along the way. What do they give for IBS?

    Thanks for your advice!

    Kara <img src="graemlins/blink.gif" border="0" alt="[blink]" />

    Leave a comment:


  • Jo Ellen Cullins
    replied
    Kara, have you ever been diagnosed with IBS? My daughter and I both have it and it is very painful at times. My daughter even fainted once due to the pain when her intestine twisted.
    Jo Ellen

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  • Flore
    replied
    Kara
    Is the first time I read a message your asking support, all the time you have been a supporting person!!
    I´m happy that your flare is less now, and I hope that you be fine soon!!!
    Tell us what your dr tell you, ok?

    Leave a comment:


  • MelanieJ
    replied
    {{{{Kara}}}}}
    I'm glad you're feeling better! Definitely let us know what the doc says. You'll be in my thoughts!

    Hugs,
    Melanie J. <img src="graemlins/grouphug.gif" border="0" alt="[grouphug]" />

    Leave a comment:


  • MelanieJ
    replied
    {{{{Kara}}}}}
    I'm glad you're feeling better! Definitely let us know what the doc says. You'll be in my thoughts!

    Hugs,
    Melanie J. <img src="graemlins/grouphug.gif" border="0" alt="[grouphug]" />

    Leave a comment:


  • Kara
    replied
    Thanks for replying Ladies!

    I have an appointment with my new primary care doc tomorrow. I have tons of pain killers to take if I need to use them. I have pretty much stayed in bed since that episode happened. I'm back to feeling normal again. It was scary as
    H*** though and I don't want it to happen again!
    I will let you all know what my new uro says next week. I pray that it doesn't happen again before that!

    Thanks for your support!

    Kara <img src="graemlins/grouphug.gif" border="0" alt="[grouphug]" />

    Leave a comment:


  • TAverill
    replied
    Dear Kara:

    I second what Sheri said. Please let us know you're ok as soon as you can.

    Hugs,
    Terri
    <img src="graemlins/blink.gif" border="0" alt="[blink]" />

    Leave a comment:


  • SheriG
    replied
    Hi Kara <img src="graemlins/hi.gif" border="0" alt="[hi]" /> I just had to answe your post, because when others post, you are always so sweet and sincere...I am soooo sorry that you are in pain, and not seeing the uro soon enough. Perhaps the emergency room, or a call to the uro, explaining that you are too sick to wait. I sincerely wish I could take your pain away ( heck, I might as well take your pain, I am so uncomfortable lately, that I don't even think some more would kill me! Anyhow, I wish you the very very best, and really hope that you can get an earlier appointment. Do you have any painkillers to help you? Please know that you are, and will be in my thoughts and prayers! <img src="graemlins/kissing.gif" border="0" alt="[kissing]" /> Feel better soon Kara, Sheri <img src="graemlins/grouphug.gif" border="0" alt="[grouphug]" />

    Leave a comment:


  • Fields
    replied
    I am so sorry you are in so much pain. Is there a pain clinic near where you live? Temporarily, could you get pain relief from a hospital er or urgent care? I hope you get relief soon. My prayers and thoughts are with you. <img src="graemlins/angel.gif" border="0" alt="[angel]" />

    Leave a comment:


  • Kara
    started a topic HELP!

    HELP!

    To anyone that has had their bladders removed and replaced with intestinal tissue:

    I am having some trouble. REAL trouble. I am inbetween docs as I have just moved. I woud like to know the difference between bladder spasms and intestinal/bowel spasms. I don't have a working email at the moment. I was curled up in so much pain I could hardly breath. I don't have an appointment with my new uro until next week as I don't have a car yet. I don't know where to turn...........

    Kara


    <img src="graemlins/banghead.gif" border="0" alt="[banghead]" /> <img src="graemlins/banghead.gif" border="0" alt="[banghead]" /> <img src="graemlins/banghead.gif" border="0" alt="[banghead]" /> <img src="graemlins/banghead.gif" border="0" alt="[banghead]" /> [img]frown.gif[/img]
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