Hi Mike,
I know the other thread was getting long and I really wanted to see how you were doing? I don't want to bother you, but I am wondering if you are having any pain that has developed like some other people have in your stoma? (Although, I am praying you have not). Hope all is well. Just need to hear something positive right now.
Mary,
I didn't mean to stop your reply in the last thread. I am really weighing the odds on this bladder removal thing. Pain meds have not worked for me, as they interacted with my antidepressant, caused allergic reactions and urinary retention. I am seeing the pain management Dr. again tomorrow, but the nurse told me that she is not sure what they can do considering I have had reactions (some severe) to every single one. They have really tried by changing doses and meds. The ones I have been through are: Tramadol -bad kidney reaction and sedation, Fentynl (not sure of spelling) severe muscle contraction in my chest, Vicodin - gastro pain and acid reflux, Subcutex (also not sure of spelling) - ended up in ER vomiting, dizzy and breathing issues, Morphine -unable to urinate and felt irritable, Dilaudid (had high hopes for this one) - severe reaction with my antidepressant and also urinary retention. I have also tried vaginal injections to help the pain, but had so much more pain afterwards. I have tried home instills as well as all the other standard IC treatments.
So, does anyone know what you do after bladder removal surgery if you can't take any pain meds? I would think surgery would be out of question for me at this point. The only thing I can take short term is Vicodin. If I take it longer than a few days, I have gastro/intestinal reactions.
I know the other thread was getting long and I really wanted to see how you were doing? I don't want to bother you, but I am wondering if you are having any pain that has developed like some other people have in your stoma? (Although, I am praying you have not). Hope all is well. Just need to hear something positive right now.
Mary,
I didn't mean to stop your reply in the last thread. I am really weighing the odds on this bladder removal thing. Pain meds have not worked for me, as they interacted with my antidepressant, caused allergic reactions and urinary retention. I am seeing the pain management Dr. again tomorrow, but the nurse told me that she is not sure what they can do considering I have had reactions (some severe) to every single one. They have really tried by changing doses and meds. The ones I have been through are: Tramadol -bad kidney reaction and sedation, Fentynl (not sure of spelling) severe muscle contraction in my chest, Vicodin - gastro pain and acid reflux, Subcutex (also not sure of spelling) - ended up in ER vomiting, dizzy and breathing issues, Morphine -unable to urinate and felt irritable, Dilaudid (had high hopes for this one) - severe reaction with my antidepressant and also urinary retention. I have also tried vaginal injections to help the pain, but had so much more pain afterwards. I have tried home instills as well as all the other standard IC treatments.
So, does anyone know what you do after bladder removal surgery if you can't take any pain meds? I would think surgery would be out of question for me at this point. The only thing I can take short term is Vicodin. If I take it longer than a few days, I have gastro/intestinal reactions.
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