Mitrofanoff and bladder denervation

[pelztier86]

hi,

I don't have ic but a severe emptying and storage dysfuncion of the bladder and uretrha.
The cause of the bladder issues is my underlying disease which is a severe chronic gut motility disease (proper peristalsis is not there)

I have now been offered the option of getting a Mitrofanoff, along with a bladder or maybe even pelvic denervation in hope that the pain will subside and the bladder capacity increase. This would enable them to use the bladder as a simple storage organ while creating a Mitrofanoff channel for catheterization.

Has anyone heard of or had these procedures done?
Also - anyone who has a Mitrofanoff - do you know if the jejunum can be used instead of the bowel segments usually used for the construction? For my bowel issues use of a jejunual segment would be better.

Total removal or augmentation of the bladder is rather risky with my bowel isses but a simple Mitrofanoff procedure would not work due to the pain and the little capacity.

Also, did you notice any change in bowel habits after the procedure?

thanks
Sarah

[Judith56]

Because of your other issues things will be different for you when it comes to results than how it can be for an IC patient. I can tell you that after my surgery as far as bowel changes, yes I did have some, but over the course of years things settled down. You may get more of a response of you go to an ostomy website where people there may have the same type of problems that you have. I suggest going to the UOAA message board. the site is www.ostomy.org.