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Mitrofanoff and bladder denervation

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  • Mitrofanoff and bladder denervation

    hi,

    I don't have ic but a severe emptying and storage dysfuncion of the bladder and uretrha.
    The cause of the bladder issues is my underlying disease which is a severe chronic gut motility disease (proper peristalsis is not there)

    I have now been offered the option of getting a Mitrofanoff, along with a bladder or maybe even pelvic denervation in hope that the pain will subside and the bladder capacity increase. This would enable them to use the bladder as a simple storage organ while creating a Mitrofanoff channel for catheterization.

    Has anyone heard of or had these procedures done?
    Also - anyone who has a Mitrofanoff - do you know if the jejunum can be used instead of the bowel segments usually used for the construction? For my bowel issues use of a jejunual segment would be better.

    Total removal or augmentation of the bladder is rather risky with my bowel isses but a simple Mitrofanoff procedure would not work due to the pain and the little capacity.

    Also, did you notice any change in bowel habits after the procedure?

    thanks
    Sarah
    Last edited by pelztier86; 06-27-2011, 02:10 PM.

  • #2
    Because of your other issues things will be different for you when it comes to results than how it can be for an IC patient. I can tell you that after my surgery as far as bowel changes, yes I did have some, but over the course of years things settled down. You may get more of a response of you go to an ostomy website where people there may have the same type of problems that you have. I suggest going to the UOAA message board. the site is www.ostomy.org.

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