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There are only 3 threads I see under bladder removal. Are there more which you need a password to view? I am not sure how the posts exactly work.
I have had ic for 12 years and I feel this could be my last resort. I have an interstim which is not helping. I want to get my husband on board with me having a cystectomy or at least a urinary diversion for a while to see if the bladder will calm down. So researching other's stories is very important right now. Does anyone know what perectage are successful?
I am immobile on weekends. Even being immobile, laying on the bed, I ache and ache SOOOO bad right now! It is a living nightmare. I just hope constantly that no one comes to the door. The neighbors do not get it. It seriously feels like no one does. I got a denial letter for my pain pills from my insurance yesterday so I have to pay for them now. I took a pill and a half and if I take any more it would knock me out. I do usually get some relief (not always) - like 4 hrs. a day from MS Contin where I do laundry and everything a quickly as possible!!!! I can barely move enough to shower at times though and cleaning my car went out the window. So I rinse it a but just went I can't see out the windows but it retakes ALL I have in me to do it like once every couple months in summer, less when it rains. I feel extreme pain and my brain hurts from getting no rest from the pain nerve signals. (I have a 9 year old now who I feel so bad for since he is stuck doing video games all the time due to my immobility. I did not picture raising him this way. 😔 I am grateful to have a child. It was always my dream. At the same time I feel that it is very important to assess you capabilities before having a child. I think I was blinded to a lot before I became a mom. ) I have had such a severe case from the beginning the posts on this topic never scared me but gave me hope. If it was to help, I would feel I wasted a Tom of the last 12 years.
I have had ic for 12 years and I feel this could be my last resort. I have an interstim which is not helping. I want to get my husband on board with me having a cystectomy or at least a urinary diversion for a while to see if the bladder will calm down. So researching other's stories is very important right now. Does anyone know what perectage are successful?
I am immobile on weekends. Even being immobile, laying on the bed, I ache and ache SOOOO bad right now! It is a living nightmare. I just hope constantly that no one comes to the door. The neighbors do not get it. It seriously feels like no one does. I got a denial letter for my pain pills from my insurance yesterday so I have to pay for them now. I took a pill and a half and if I take any more it would knock me out. I do usually get some relief (not always) - like 4 hrs. a day from MS Contin where I do laundry and everything a quickly as possible!!!! I can barely move enough to shower at times though and cleaning my car went out the window. So I rinse it a but just went I can't see out the windows but it retakes ALL I have in me to do it like once every couple months in summer, less when it rains. I feel extreme pain and my brain hurts from getting no rest from the pain nerve signals. (I have a 9 year old now who I feel so bad for since he is stuck doing video games all the time due to my immobility. I did not picture raising him this way. 😔 I am grateful to have a child. It was always my dream. At the same time I feel that it is very important to assess you capabilities before having a child. I think I was blinded to a lot before I became a mom. ) I have had such a severe case from the beginning the posts on this topic never scared me but gave me hope. If it was to help, I would feel I wasted a Tom of the last 12 years.
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