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  • Tailbone Fire

    I had to get my hair cut yesterday and had to sit for 3 and 1/2 hours. I get my hair cut once a year. It grows so fast I had them take off 6 inches. It was getting heavy an annoying. Even in a ponytail it was getting into all of the wrong places. An MRI of the cysts on my tailbone is on Wednesday morning. Then I had to drive an hour today to my Mom's house to take her to her MRI tomorrow. My tailbone is on pure fire! Even with the pudendal nerve cushion. My coccyx cushion had not shown up yet.

    Kara
    Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

    "One hour at a time, this was NOT my American Dream but it has to work out somehow."

    I also have some journals of my journeys, past and some present at:
    http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

    Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

  • #2
    ****
    Jen

    *Diagnosed with severe IC in 2004
    *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
    *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
    *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

    **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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    • #3
      sory your tail bone hurts, believe me I know how you feel.. Mine was broken, and it healed in the wron position, and I have sacralititis.. I can't sit normally very long. sending you hugs and hope you feel better.
      'The will of God will never take you where the Grace of God will not protect you.'

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      • #4
        sorry your tailbone is on fire
        Erika
        wife to Jeremy
        mom to Emma (3-8-05)
        and Natalie (7-23-07)


        Meds i'm currently taking:
        Lortab as needed for pain


        Meds that did not help:
        Detrol LA
        Lexapro (caused urgency)
        Amatryptaline 10mg once a day (helped IC but made me feel like CRAP)



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