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  • Texas Baby
    replied
    pain meds

    i don't get cranky when I'm on pain meds , just when I'm in pain. If you are concerned about addicition you might talk to your doc, but I have found out that with all of the pain meds I have been on over the years and there have been lots of them and they have been strong, I haven't had a problem not taking them anymore. Everyone is different though and that is just my experiance.I hope you are doing better!
    Blessings,
    Eva

    Leave a comment:


  • aprilchen
    replied
    Thanks Maggie

    I completely agree with you SrMaggie. I think most of us have experienced times where we were thought to have been addicts, but needed the pain medication JUST to make it through the day.

    Leave a comment:


  • SrMaggie
    replied
    I think I've heard that if you take meds to live it is the right attitude. But if you live to take the meds then it could be addiction. I have a friend who has been labeled addicted to pain meds, but I think she really needs them. It is so misunderstood.

    Leave a comment:


  • aprilchen
    replied
    Pain meds and Instills

    Thanks guys. I have a praise to report. I called the new doctor's office yesterday and someone canceled at their other office which is only about 20 miles further than I WAS going to drive (a total of about 90 miles one way) and I am getting in on March 5th! Yay! Anyway, hopefully she will let me do them at home. Please keep Aaron and me in your prayers. When I take the Percocet and any narcotics, I get mean...and treat the one person (Aaron) who is so supportive like crap. For instance, yesterday he asked me to make him a sandwich when he came home from work. I was asleep and I snapped at him...not meaning to, but it just came out that way.

    Do any of you get irritated easier when you're taking pain meds?
    This is a big concern for Aaron....and addiction. My stance is that if you NEED them, you will NOT get addicted because they make living possible for most of us. Without them, I am not sure I could even move some days.

    Thoughts?

    April

    Leave a comment:


  • Berkshire Road
    replied
    Didn't have to convince my dr. -- it was his idea, and I think more and more practices are encouraging home instillations. I have to get my husband to do mine, but most people seem to be able to do it themselves.

    That's odd that they're worrying about sterlility; it's not a sterile procedure, it's just a clean procedure. Nothing pierces the skin.

    Maybe the dr. you're seeing in March will let you try.

    Call me any time!

    Leave a comment:


  • ihurttoo
    replied
    I do the instills at home now. However, for YEARS I had to go to my Dr. 3 x a week to get them done. It was a major inconvience! The worst problem was if I needed a rescue instill over a weekend. I had to go to the Fast Track at the hosptial to get them, and if they were closed (like after hours or holidays), I had to go to the actual ER to get them and wait for hours on end for the heart attack patients and car accidents etc to go first. It was ridiculous, when I was perfectly capable of doing them at home!

    My Dr. had the same objections as yours. Plus, I got UTIs so freq that he was afraid I would get even more by doing them at home. I just kept at him, and finally told him to let me try it and if I had a sudden increase in UTIs over what I was getting by coming to him, then we could always return to doing it in the office. So, he agreed to a one month trial, and I have been doing them at home ever since. He did tell me to get the home UTI test strips to make sure I didnt have a UTI before I do each instill. So, I do that. But, so far, so good!

    I hope and pray yours will let you do them at home too.

    Hugs,
    Amy

    Leave a comment:


  • aprilchen
    replied
    Thanks

    At this moment, staying optimistic is really HARD. I was released from the hospital the day before Valentine's Day. Here's what has happened since. On Valentine's Day, I was hurting so bad that I took three Percocet 7.5 (because I am allowed three per day).

    The hardest part to work through all this is that my bladder CONSTANTLY and I really feel like ripping it put someday. Now, I am dealing with severe left hip joint pain. Does anyone know if that is related to IC or is it another ache and pain?

    Also, in conversation with my pain specialist he is doing my last epi's in a series of three. The first one was at L-4/5 in the lumbar spine, the 2nd was a Thoracic Epidural and the third I think he is doing on my left hip. Also, he is wonderful about making sure my pain meds are working. If they aren't he changes them. I WAS on Lortab 10's three to four times a day for awhile, but now those stopped working and he changed me to Percocet 7.5. My next visit, he might have to increase the 7.5 to 10mg.

    Another thing I wanted to share was that when I was in the hospital this time, I was catheterized for five of the seven days I was there. Even though the catheter hurt and was uncomfortable, I believe that is the best I have felt since my IC diagnosis. Being catheterized (at least for me), took away the urgency, frequency and such. I still had pain, but not nearly as bad as it was BEFORE being cathed.

    How many of you actually do your own lidocaine/heparin instillations at home? I am trying to talk my doctor in to it, but his stance is that I need to come to the office so that they can make sure I am completely clean with betadine down there. I feel a little insulted because this doctor MUST somehow think I would not be capable of making sure my you know what is sterile. I am SO tired of going to the uro once a week for those instillations.

    Anyway, sorry this is SO long...I just needed to rant a little, well a lot! Opinions are welcome...especially from those of you who DO you OWN instillations at home. How did you convince your Uro to let you do that?

    Leave a comment:


  • Bessie
    replied
    I am so glad you are home with that sweet husband of yours. The bracelet sounds beautiful. Hope you are feeling better.....there is no place like home

    Leave a comment:


  • ihurttoo
    replied
    So glad to see you are home and feeling better! I am glad you made it home in time for V-day. Hope you continue to feel better with each passing day. Hugs, Amy

    Leave a comment:


  • tigger_gal
    replied
    I am so glad you are home and got to spend valentines day with hubby..
    I hope you are feeling better.

    Leave a comment:


  • Kara29
    replied
    Glad you are home!

    April,

    I'm glad you are home. Good Luck to you. Sounds like You have a great support system.

    Kara

    Leave a comment:


  • aprilchen
    replied
    Thank you!

    Thank you guys! Aaron gave me the most wonderful Valentine's Day gift today. He had a charm bracelet engraved with our saying on it...Je t'aime (which means I love you) in French. And it has our wedding date: 8-12-06 and Love~Aaron on it. On the other side it has the Chinese love symbol because he is a half Chinese. We try to honor his heritage alot. Anyway, thank you all so much! I really think having friends who understand what we're going through means SO much!

    April

    Leave a comment:


  • aprilmae
    replied
    So glad you are home!! Will be pm'ing you back soon!

    Lots of hugs,
    April

    Leave a comment:


  • ICNDonna
    replied
    I'm so glad you're back home. It's always much easier to rest in your own bed --- hopefully snuggled close to your husband.

    Donna

    Leave a comment:


  • Sarojini
    replied
    Wonderful to see you home!!! Happy Valentine's Day!!!!

    Leave a comment:

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