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MRI and Pudendal Nerve Entrapment
My MRI came back showing nothing but the huge cyst on my left ovary that continues to get bigger. It's up to 5 cm right now. My MRI did not go well. I had to be put to sleep because the pain on my tailbone was too horrendous to lie on top of for 2 and 1/2 hours. I went in at 7:30AM and was done at 2PM. They had to keep stopping the MRI because I was in too much pain and would not stay under the anesthetic. They tried to put me to sleep but it wasn't working. They also tried to control the pain with Fentanyl which is the only narcotic I respond to with respect to pain other than the urethral area which does not respond to any meds and in fact often gets worse with medications.
Even though the MRI showed nothing abnormal besides the cyst, did not explain the massive tailbone pain, I have been officially diagnosed with Pudendal Nerve Entrapment with the possibility of Vetibulitis and Vulvodynia. Plus the Ovarian Cyst, Massive Abdominal adhesions, and Endometriosis. I have an appointment with the Chronic Pelvic Pain Specialist next week. The pain in the tailbone is so bad that they are thinking of putting me back on Fentanyl patches and break through ACTIQ lollipops. I don't want the patches but the lollipops will be ok for as needed use. The doctor is calling me tomorrow about it. I am still planning on going to NH in March with My Husband to do the final test for Pudendal Nerve Entrapment and discuss what my options are. He is the Surgeon that does the PNE Decompression and Vestibulitis Surgery. That most likely will be held off until after my Sister's Wedding and my Mother's Lumpectomy and or Mastectomy/Reconstruction.
The origin of the pain may have been Pudendal Nerve Entrapment from the start in 1999 which would explain why the Bladder Removal, Urethrectomy, and Indiana Pouch did not help the Urethral Pain. The Pudendal Nerve has been squashed all along. I still had End Stage Refractory IC with a bladder the size of a walnut, non-functioning and had to have both the Cystectomy and Urethrectomy/Indiana Pouch. Those surgeries were still needed regardless of the Pudendal Nerve Entrapment. This just explains the left over pain better. It wasn't phantom urgency like we originally thought. It was really caused by the PNE.
Life goes on! I'll just keep marching ahead!
Kara
Even though the MRI showed nothing abnormal besides the cyst, did not explain the massive tailbone pain, I have been officially diagnosed with Pudendal Nerve Entrapment with the possibility of Vetibulitis and Vulvodynia. Plus the Ovarian Cyst, Massive Abdominal adhesions, and Endometriosis. I have an appointment with the Chronic Pelvic Pain Specialist next week. The pain in the tailbone is so bad that they are thinking of putting me back on Fentanyl patches and break through ACTIQ lollipops. I don't want the patches but the lollipops will be ok for as needed use. The doctor is calling me tomorrow about it. I am still planning on going to NH in March with My Husband to do the final test for Pudendal Nerve Entrapment and discuss what my options are. He is the Surgeon that does the PNE Decompression and Vestibulitis Surgery. That most likely will be held off until after my Sister's Wedding and my Mother's Lumpectomy and or Mastectomy/Reconstruction.
The origin of the pain may have been Pudendal Nerve Entrapment from the start in 1999 which would explain why the Bladder Removal, Urethrectomy, and Indiana Pouch did not help the Urethral Pain. The Pudendal Nerve has been squashed all along. I still had End Stage Refractory IC with a bladder the size of a walnut, non-functioning and had to have both the Cystectomy and Urethrectomy/Indiana Pouch. Those surgeries were still needed regardless of the Pudendal Nerve Entrapment. This just explains the left over pain better. It wasn't phantom urgency like we originally thought. It was really caused by the PNE.
Life goes on! I'll just keep marching ahead!
Kara
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