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  • #1

    Oxycontin (so sick)

    Because I have Multiple Chemical Sensitivities, I can only take Zofran for Nausea and Vomitting. The Oxycontin Extended Release with the Zofran has made me so sick. I was hoping that I would be able to tolerate this medication and get some pain relief. The pain is exactly the same and now I am as sick as if I drank a whole bottle of cheap wine. I can't get the spinning to stop.

    Once I start to get sick the Zofran doesn't work at all. I have to wait unitl 8PM for the Oxycontin to exit my system.

    Over the years, I've traveled through all of my pain management options as far as medication goes. The only thing left if to go back onto is the Fentanyl. It doesn't make me vomit unless the dose it too high but I did not want to go there at all. If pain meds are not going to help this sort of pain, then I would rather not take them at all. Narcotics are Nasty sometimes!

    Oh dear............

    Kara
    Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

    "One hour at a time, this was NOT my American Dream but it has to work out somehow."

    I also have some journals of my journeys, past and some present at:
    http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

    Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.
    Tags: None
  • #2


    Kara, I'm sorry this isn't working for you. Let's hope the time passes quickly and the Oxy gets out of there... I know that when I took OxyContin, it quit working after like 4 hours, but I guess I have an over-ambitious liver

    Paddington is sending hugs and headbutts too.
    ****
    Jen

    *Diagnosed with severe IC in 2004
    *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
    *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
    *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

    **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Comment

    • #3
      I'm really sorry, Kara.
      Hey, why don't you try drinking a whole bottle of cheap wine? At least you'd be unconscious...
      Seriously, I hope this passes soon and DON'T try again. I don't know how you live with the pain. You are so incredibly strong.
      Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
      Wishing you happiness and good health, and all the best out of life.

      Peace, Carolyn
      ___________________________________________________

      Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


      On the Beach with IC

      Comment

      • #4
        I had trouble with the timed release oxycontin too, but I can take percocet with no problems, since it is not as long acting. It is basically the same drug, but in short duration form. Maybe that would work for you?

        Comment

        • #5
          Kara,
          I'm so sorry. On top of everything else, now you have to deal with the room spinning and nausea...you truly deserve some relief here!
          I agree with Carolyn...maybe if you drink that cheap wine, it will counteract everything...or you'll just be unconscious! LOL

          Seriously, I hope you are feeling better.

          ~Claudia

          "A heart is not judged by how much you love; but by how much you are loved by others."
          ~ The Wizard of Oz

          "If I ever go looking for my heart's desire again, I won't look any further than my own
          back yard. Because if it isn't there, I never really lost it to begin with!" ~ Dorothy

          Comment

          • #6
            marijuana and oxycontin

            my friend bruce has just passed away from bowel cancer adn bone cancer exacerbated by HepC. He had the same troubles with Oxycontin and almost all other pain meds, but smoking marijuana right after taking the caps really seemed to ease the nausea and allowed him to eat (which was a rarity in the end).

            Comment

            • #7
              Kara,
              I was on Oxycontin for a good while with relatively good results. Most of the early side effects disappered within a few days(nausea, diarrhea) The pain control itself lasted about 3 days. The one thing I did not like is that when the pain control drops off, *on me anyway*it plummets, so make sure you have breakthrough meds availabe. I have had good luck witht the Methadone too. Pleease let me know if I can help. I'm always around.

              Hugs,
              Barb
              (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

              [SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
              :angel: IC Angel Volunteer Coordinator :angel:
              :) Contact me via PM or e-mail if you would like to help
              I have learned all about life in 3 words: It goes on! :D--Robert Frost
              PCOS 7/85
              RSD 7/94 :headbang:
              Endometriosis 9/98 :toilet:
              Antiphospholipid antibody syndrome 9/99
              Kidney stones--too many to count
              Factor V Leiden mutation 10/02
              IC 6/03 :evilsmile
              Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
              "Spirit is an invisible force made visible in all of life"--Maya Angelou
              "Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]

              Comment

              • #8
                Kara what type of zofran are you taking??? The disolve ones work much better than the pill form. it bypasses the stomach and goes right to the bloodstream so it usually works quicker.

                most docs only perscribe the oral pills and not the ODT form but give the ODT form a try it may work better for you. and YES our insurance WILL cover it!
                Erika
                wife to Jeremy
                mom to Emma (3-8-05)
                and Natalie (7-23-07)


                Meds i'm currently taking:
                Lortab as needed for pain

                Meds that did not help:
                Detrol LA
                Lexapro (caused urgency)
                Amatryptaline 10mg once a day (helped IC but made me feel like CRAP)


                Comment

                • #9
                  I'm so sorry it is causing you troubles! Hope you feel better soon!
                  Love Sandra
                  "Never Give Up."

                  To view pictures of my creative interests and Maine Coon kittens click here: http://www.flickr.com/photos/[email protected]/

                  My Photobucket Link:
                  http://s237.photobucket.com/albums/f...ramack_photos/

                  Comment

                  • #10
                    Sorry you are having problems with the medicine. Hope you feel better soon. Sending you lots of hugs
                    Miss Bessie

                    Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

                    Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

                    Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

                    Comment

                    • #11
                      Thank You

                      Thank You all for your suggetions. Judith, I will give the percocet a try if they will presribe it to me. Erika, I will ask about the dissolving Zofran. Barb, Unfortunately I am allergic to Methadone....The Oxycontin extended 12 hour release is all out of my system now (Thank God!) I just need to find a replacement.

                      I am going to ask about the regular Percocet and the other form of Zofran.

                      Thanks Again!

                      Kara
                      Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

                      "One hour at a time, this was NOT my American Dream but it has to work out somehow."

                      I also have some journals of my journeys, past and some present at:
                      http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

                      Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

                      Comment

                      • #12
                        Kara, I'm so sorry this happened to you. Most narcotics make me sick to my stomach, too, but I am able to tolerate Percocet so I"m hoping Percocet will work for you too without making you sick.

                        Blessings,
                        Lori

                        Comment

                        • #13
                          no problem! Glad my anti-nausia medication can be put to use!
                          Erika
                          wife to Jeremy
                          mom to Emma (3-8-05)
                          and Natalie (7-23-07)


                          Meds i'm currently taking:
                          Lortab as needed for pain

                          Meds that did not help:
                          Detrol LA
                          Lexapro (caused urgency)
                          Amatryptaline 10mg once a day (helped IC but made me feel like CRAP)


                          Comment

                          • #14
                            There are many medications that can be compounded and made into a gel; which can be applied to the painful area. The medications bypass the digestive track and can be extremely helpful for many patients.

                            If your healthcare provider is not familiar with these types of compounded medications; he/she can contact a compounding pharmacy. The one that I use has a list of compounded medications that they prepare for different symptoms/illnesses. If anyone is interested in having their healthcare provider contact my pharmacist, you can send me a personal message through this website or email me at [email protected] and I can give you their contact information; with a prescription from your healthcare provider, they mail the medications to your home.

                            I have had several IC patient friends that have had Valium; Neurontin; Elavil and other drugs compounded into gels; they apply it to their pelvic/bladder area, and are doing well. I'm using the Elavil gel compound with ultrasound and have found it to be very helpful; most patients don't use ultrasound, they just apply it directly.

                            I suggest that you consult with your healthcare provider if you believe that the information above may be helpful; your healthcare provider will determine the appropriate treatment regimen for you.

                            Only your healthcare provider can determine if the above suggestions are appropriate treatment options for you; these are just some suggestions that you can discuss with him/her.

                            The contents in this post are provided for informational purposes only. The contents are not intended in any way to be a substitute for professional medical advice. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your medical condition.

                            Best wishes, ICB

                            Comment

                            • #15
                              Kara, i posted this to you in the other forum but I dont know if you saw it. There is a new kind of fentanyl out called Fentora. It comes in a pill form that you put in your cheek and dissolve, like the sucker but in a pill. It is cheaper than the sucker, still expensive but a little cheaper, and comes with a form that doctors can fill out that says the patient is using it for pain relief not related to cancer pain. So some doctors who wont prescribe the suckers will prescribe this.
                              Anyway, I just wanted to let you know about it. I hope they can find some way to help you soon.
                              With love and hugs
                              Sarah
                              Current meds; , effexor 37.5 mg 2 times a day, and lyrica 100 mg 3 times a day, lots of reading and snuggling with the pets!

                              Comment

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