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  • #16
    Originally posted by Kara29
    Narcotics are Nasty sometimes!

    Oh dear............

    Kara
    Kara,

    A couple of things: have you tried Phenergan or Tigan (generic name I think) or can you have it? Also, sometimes Benadryl helps me with nausea. And, you could put an ice pack on your neck and lie in one place...try not to stand and you might get relief. Anyway, I don't know if any of this works, but it does for me...so anyway, just a thought. Oh, and I agree completely about narcotics being nasty about all the time. I am to the point where I am tolerant to everything except Oxycodone and Methadone. I hate it...Demerol does nothing to help the pain even anymore. We'll be praying for you. The Duragesic patch is pretty awesome because once it takes effect and you change it every 3 days, most of the time I did not need breakthrough meds...but I stayed sleepy all the time with it, and this was back when I was in graduate school for Social Work and drove two hours one way to an internship...so really it was dangerous to be SO sleepy.

    I hope you feel better soon.

    April
    Last edited by aprilchen; 03-01-2007, 09:06 AM.
    Diagnosed in 2007, but had IC symptoms since 2002. My current regimen includes: home instillations of Marcaine, Heparin and Solu-Medrol plus vaginal valium suppositories nightly. I also use Tramadol for pain as needed.

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    • #17
      Thank you!

      Thank you for the suggestions!

      Kara
      Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

      "One hour at a time, this was NOT my American Dream but it has to work out somehow."

      I also have some journals of my journeys, past and some present at:
      http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

      Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

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      • #18
        You're welcome. Maybe they will help you.
        Diagnosed in 2007, but had IC symptoms since 2002. My current regimen includes: home instillations of Marcaine, Heparin and Solu-Medrol plus vaginal valium suppositories nightly. I also use Tramadol for pain as needed.

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        • #19
          I am having similar issues with the medications as well. I cannot take any pain meds though. I am allergic to percocet and oxycodone doesn't even touch the pain. I have now started smoking pot so that I can try to ease the nausea and get some food in my system. I know many who do not condone this, but it is the only relief I can get.



          Note from ICNDonna: We do not encourage the use of illegal drugs. In addition to the legal issues (you could be arrested), there are safety issues. First ask yourself if anyone who is willing to go outside the law to become a dealer (a serious crime!) can be trusted to provide you with a safe product.
          Last edited by ICNDonna; 05-25-2007, 03:23 AM.

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          • #20
            I know this may not work for everyone, but ask to see if Topamax is something you could try. I think Cannabas is a neural drug and so is Topamax and so maybe they'd work the same way. Maybe it would help you, I don't know. It may be safer and easier for you to obtain also.

            I hope you find relief soon.
            http://www.TheCraftyEwe.etsy.com

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            • #21
              Topamax

              Originally posted by Moonheart View Post
              I know this may not work for everyone, but ask to see if Topamax is something you could try. I think Cannabas is a neural drug and so is Topamax and so maybe they'd work the same way. Maybe it would help you, I don't know. It may be safer and easier for you to obtain also.

              I hope you find relief soon.
              Hey Guys,

              I have said this before and I know it does not cause this in everyone, but many of us have a lot of chemical sensitivities. So, I'd be careful with Topamax because that is where my kidney stone nightmare started and I have had 31+ kidney stones, all resulting from three years use of Topamax. They were most all analyzed and that is what they were from. However, I do agree with Moonheart in that maybe you should try other options before resulting to illegal substances like pot. It would do tremendous harm to your family if you were arrested for that. Just a thought. There are many things (which I mentioned in my earlier post) that you can do to tame nausea from narcotics. Also, with use of the Duragesic patch (very strong pain patch), the narcotic level in your body is more stable instead of up and down with pills and generally they cause less nausea). Just a suggestion. But I do understand why you'd resort to anything to relieve the pain, so please do not think I am being insensitive at all....just concerned about the legalities. Personally, I think if alcohol is legal then so should pot be legal. People are generally more mellow on pot and people high on pot don't usually create all the crime like alcoholics. Take a look at countries like Denmark, for instance or Holland. Either way, I do hope you might look at these suggestions and feel better soon! Ever since my pain specialist put me on Duragesic, I feel like I have my life back again.
              Diagnosed in 2007, but had IC symptoms since 2002. My current regimen includes: home instillations of Marcaine, Heparin and Solu-Medrol plus vaginal valium suppositories nightly. I also use Tramadol for pain as needed.

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              • #22
                There is also a medication called marinol, it is a prescription med that is derived from cannabis, but this is legal of course. It helps tremendously with nausea from what I am told. I have a few friends who have severe gastroparesis and have to be on this med to help with the relentless nausea, and this really helps them. Just a thought. The only thing is, alot of doctors wont prescribe it unless you have tried all other things such as zofran,phenegran, compazine etc... Marinol is usually given to people undergoing chemotherapy to help with the nausea. But you could ask your doctor about it.
                Jen

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                • #23
                  This is a very old thread so I am closing it.

                  Donna
                  Stay safe


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