Announcement

Collapse
No announcement yet.

I am SHOCKED! Wish me Luck!

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • MakinIT
    replied
    Wow, Kara, my toes curled and rear clenched when I was reading the description of what you had to go through. My own anxieties with medical procedures made my stomach flip. I am glad you had a compassionate doc. Sometimes these specialists are so....jerkish. the further they get from the person in the patient, the more they view the patient as simply a problem to be solved. (I get so frustrated with that)
    You are very courageous, and I'm not trying sound trite. I get so down and angry with my own issues, try to infuse humor but sometimes nothing works. You are doing what you need to do to get life on track!!! I admire you. My own experience with trying to implant a spinal nerve stimulator was so traumatic I struggle with anything else.
    I hope this helps you!!!

    Tracey

    Leave a comment:


  • Bessie
    replied
    So glad everything went o.k.
    Will keep you in my prayers

    Leave a comment:


  • redfearn
    replied
    I'm Here For You!!!!

    KARA--

    I'm so sorry that you are going through such terrible situations right now. How is your Mother? I'm so worried about you, but I am relieved that SOMEONE finally diagnosed you with this terrible pain you've been having.....I wish I could be there with you while you undergo this horrible test!!!

    I also want to say how much you deserved this award!!!! I have yet to find any material via books, internet, and Doctor's that have helped me out as much as you have. You've been so there for me during my bladder removal and Indiana Pouch. Even when you are in such terrible Pain, you always put my needs and questions first. I cannot say enough to Thank You. God certainly Created a Wonderful Person!!!!

    I'm going to try to call you----

    Love and Huge, Huge Hugs!!!!!!

    Laura Redfearn

    Leave a comment:


  • ihurttoo
    replied
    Glad to see you made it back in one piece! I am so glad he was kind and compassionate. Glad to hear he had some ideas for things to help you. I hope things get better without the surgery, but if you do have the vestibulectomy, let me know if you have any questions for that part. I will be glad to answer anything I can.

    Love and hugs,
    Amy

    Leave a comment:


  • Trishann
    replied
    Hey Kara just been thinking about you alot. I am happy to know that there is hope and you will have someone working with you.
    Just wanting to send you hugs, Trishann

    Leave a comment:


  • Mel53H
    replied
    Hey! Glad your back and that part is over with!

    I like your hair in the new picture. Did you have some highlights put in it? It looks nice.

    Leave a comment:


  • SharonA
    replied
    Glad to hear from you. You have been on my mind a lot over the last couple of days. (((HUGS)))

    Leave a comment:


  • Emma's Mommy
    replied
    im glad everything went well!

    Leave a comment:


  • sandramac
    replied
    Kara Im so glad your home. Your new picture is beautiful. You look stunning ! i've been thinking of you & your Mom , How's she doing? call you later !
    Love & Hugs Sandra

    Leave a comment:


  • Kara29
    replied
    New Hampshire PNE Specialist

    With all of your prayers and support, I made it through the EMG but it's not something I ever want to have to go again.

    We are back from New Hampshire. The Doctor was something special, VERY compassionate and understanding! He took more time with us than any doctor in 9 years has given to my care. He talked with us for almost 2 hours. He answered all of our questions and concerns. We were able to communicate easily and honestly with him. There are no easy answers with what is going on with me. The EMG was inconclusive and may be an indicator of just how entrapped or damaged the Pudendal Nerve Is. There is no way to have a certain answer with any PNE case. The physical exam that he did revealed some classic signs and symptoms of PNE and also some unusual findings. He would like me to continue with my treatments in Rochester, NY. That includes 3 more Pudendal nerve blocks. He wants me to find a Pelvic Floor Therapist in my area to help with some Myofascial Pain Release of my Pelvic Muscles. They are stuck and barely move. He wants me to continue communicating what is happening with each treatment as it will be very useful to know what to do moving forward.

    He is suggesting a Vestibulectomy and Pudendal Nerve Decompression Surgery if I don't get any relief from my upcoming treatments.

    Despite the pain, we were very happy with our trip! I will continue to move forward knowing that there is help!

    Love and Hugs to you ALL!

    Trip to PNE Specialist, New Hampshire 2007



    Kara

    Leave a comment:


  • Texas Baby
    replied
    test

    kara,
    I am praying for you. I feel like the doc will come up with a solution this time! I pray that your trip will be worth it! You are such an encouragement to everyone! You go girl!
    Blessings & Hugs!
    Eva

    Leave a comment:


  • Emma's Mommy
    replied
    can't wait to hear how it went!

    Leave a comment:


  • IC SARAH-CPP
    replied
    Oh Kara good luck! I am sending big hugs and cant wait to find out how it goes. Just think of your lovely Hawaii beach!
    love Sarah

    Leave a comment:


  • Emma's Mommy
    replied
    Kara you'rs such a strong person i really give you alot of props for everything you have been through.

    if you need ANYTHING when you get back to Syracuse don't be scared to ask!

    I make a mean chicken parm and can call for take out with the best of them


    i hope your test goes well and it isn't too painful.....and don't worry i know you can do this!

    Leave a comment:


  • Mel53H
    replied
    Take care.

    Leave a comment:

Working...
X