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excruiciating pain in arms

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  • #31
    Probotics

    What are Probotics, or should I say I dont understand how they work.My accupuncture lady adviced me to take some.
    Blessings,
    Ruth

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    • #32
      From what I understand, they help with intestinal problems...as my chiro was showing me research (such a dear man, he's dying of bladder cancer and is worried about my problems?!! I have to tell him because He can't adjust my neck anymore) But research has shown for some with RA "leaky gut" problems which means....I'm not exactly sure. How's that for help? I think it's that your intestines have problems and don't process stuff correctly so some stuff goes where it shouldn't? Anyway, your gut has a nice flora of yeast (good yeast) to kill the bad stuff. Probiotic therapy is supposed to beef up that flora of good yeast. We all have good bacteria and yeast in our bodies that is specific to us...and treats other bacteria as invaders...the leaky gut I think is supposed to cause inflammation of joints as your body reacts to the bad stuff. Sorry my explanation is so choppy and difficult to understand. I've lost my teaching mojo.
      I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

      Medications I CURRENTLY take:
      90 mgs Ms contin (45 mgs Am/PM)
      Percocet as needed
      Topomax 100mg day
      Ambien 10 mg bed
      desipramine 25 mgs




      If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
      Albert Einstein

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      • #33
        Uh, I don't know anything about complex regional pain syndrome. Although I don't think it's regional anymore. I awoke from a nap yesterday feeling very hot and uncomfortable and realized it was because my legs hurt so bad. So it has moved south. Iknow many of you have had worse stuff, especially under this catagory...but it is the only one that fits me with everything going wrong. I honestly feel like I am insane. My poor mom blames herself on my health because she smoked the entire time she was pregnant and she and my dad smoked around me (with asthma) constantly. but I always tell her she didn't know better. What's done is done. She's a great lady but I fear her living in guilt for the rest of her life. I've tried to talk her into seeing a counselor but there is nooo way.

        Thanks for listening to my situation...I appreciate it. I am going bananas.

        Tracey
        I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

        Medications I CURRENTLY take:
        90 mgs Ms contin (45 mgs Am/PM)
        Percocet as needed
        Topomax 100mg day
        Ambien 10 mg bed
        desipramine 25 mgs




        If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
        Albert Einstein

        Comment


        • #34
          Tracey,

          Pain is Pain no matter where you are feeling it. I'm glad you have a place to talk about it.

          Your symptoms sound similar to some other disorders. That is why I asked if your doctor had ruled those out. I was just wondering if they ruled out Reflex Sympathetic Disorder and or Complex Regional Pain Syndrome. Treatment for complex regional pain syndrome is most effective when started early in the course of the syndrome.Complex Regional Pain Syndrome (CRPS) is the term used to describe pain and swelling in one part of the body. CRPS usually affects the hands, feet, elbows or knees, but can affect any part of the body.The pain may start after an injury, where the nerves have been damaged, or there may be no known cause for it to start. The pain usually gets gradually worse and may spread to other parts of the body.

          There are lots of websites on this: http://www.mayoclinic.com/health/com...265/DSECTION=2

          Kara
          Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

          "One hour at a time, this was NOT my American Dream but it has to work out somehow."

          I also have some journals of my journeys, past and some present at:
          http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

          Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

          Comment


          • #35
            Hi Kara

            I tried to write you back last night and I was so pooped I couldn't see straight. I'm still dozing off so I hope you don't get any wierd words...it means I dozed for a second. It reminds of me when i first got IC and was getting adjusted to pain meds and could not stay awake for the life of me. I did go to bed last night with no extra pain meds...made it tough to stay asleep but I did ok. (I have to drive on Thursday so I have to haveall the valium and excess pain meds out of my body..)

            The pain syndrome you speak of sounds like no fun whatso ever...it sounds pretty CRPpy. (get it...ha, ha) oh well...ba doom ching. I followed your webpage and I couldn't decide what was worse. My hopeful situation is a mild case of RA but that doesn't look so good because it hit me hard a month ago, hasn't ceased but gotten worse, is symetric, AND I have the RA factor of 160. See..some people have the RA factor and are still neg because it is fairly low and the pain goes away and was mild (vice versa also happens) I haven't read in the lit ANYwhere anyone over a 120. And they were in a wheelchair. My knees are feeling it, my ankles...I'm doing the mild exercises my PT gave me to do. SO...it is being done. I see her once a week and have done home exercises and am doing swimming at the pool near my home. (ok not swimming...resistance running in the water...looks stupid but at least I can get my heart rate up)

            I don'tknow if any of you have this... Please tell me if any of you have this crushing need to sleep. ALL the time. i got up with my husband at six today, and took a shower, cleaned up, put on make up (no reason, just to feel awake) and now I want to crawl back into bed.

            I really appreciate all of your advice and listening to me whine. I just feel like evertime I start to accept a new curve ball thrown at me ( hysterctomy, orthopedic surgeries, year long paralysis, rough preganancy, diabetes, Interstitial cystitis...that was a tough one because I lost my career...NOW this...And my husband has ridden almost every step of the way,I just want it to be normal.)

            You guys are great. i think I would have gone crazy a long time ago with out this board. Oh, and my bladder is rising and falling in terms of pain with my RA. Wierd, eh?
            Last edited by MakinIT; 04-10-2007, 05:26 AM. Reason: change wording
            I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

            Medications I CURRENTLY take:
            90 mgs Ms contin (45 mgs Am/PM)
            Percocet as needed
            Topomax 100mg day
            Ambien 10 mg bed
            desipramine 25 mgs




            If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
            Albert Einstein

            Comment


            • #36
              I am tired like that all the time Tracey. I have days where I can wake up just enough to get the kids off to school, and then have to crawl straight back into bed. I had one day where I didn't wake up till 3 or 4 in the afternoon! And that was AFTER sleeping most of the night.

              It's miserable. It really is. Then to have flares along with it...miserable.

              Hugs,
              Me
              http://www.TheCraftyEwe.etsy.com

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