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RN's or MED Folks: What the heck is this?

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  • RN's or MED Folks: What the heck is this?

    Hi guys

    I went in this AM for my quarterly diabetes pop quiz...(hb1ac, cholesterol, etc..) I guess they also check something called CK...(some enzyme that is released from either the heart or skeletal muscle when you are having a heart attack of problems with skeletal muscle issues...they still are scratching their collective medical heads at my high RA level a couple weeks ago) So the "information nurse calls and tells me my CK is high, somewhat. normally between 20 and 200, mine was 470. I was reading that most people with problems like heart attacks were at 1200. and that it takes 18 hours to get to that point. I'm a little young for a heart attack. (oh yeah...the info nurse had no clue what the reading meant) So anyway, this leaves an issue with skeletal tissue which is more likely, if at all. That is auto immune related and I am becoming highly annoyed with these wierd things cropping up. They say if skeletal tissue it can be a # if things. Myocitosis, Muscular Dystropy, MS, being lazy, injuries, WHATEVER...AAARGH...I am sick of dis stuff.

    Please let me know if you know if you know of this test.... I'm so tired of solving one problem and having anothe pop up, This is taking forever to clear up.

    Tracey
    I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

    Medications I CURRENTLY take:
    90 mgs Ms contin (45 mgs Am/PM)
    Percocet as needed
    Topomax 100mg day
    Ambien 10 mg bed
    desipramine 25 mgs




    If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
    Albert Einstein

  • #2
    Tracey,
    You're in luck, I know all about CK(creatnine kinase). PM me.

    Hugs,
    Barb
    (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

    [SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
    :angel: IC Angel Volunteer Coordinator :angel:
    :) Contact me via PM or e-mail if you would like to help
    I have learned all about life in 3 words: It goes on! :D--Robert Frost
    PCOS 7/85
    RSD 7/94 :headbang:
    Endometriosis 9/98 :toilet:
    Antiphospholipid antibody syndrome 9/99
    Kidney stones--too many to count
    Factor V Leiden mutation 10/02
    IC 6/03 :evilsmile
    Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
    "Spirit is an invisible force made visible in all of life"--Maya Angelou
    "Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]

    Comment


    • #3
      Hi Babs: It was nice chatting w/you liast night..we musta got cut off or i blabbered so long your meds took effect, ha, ha, ha...I thought I heard snoring....

      Very Good luck to you. And thanks for the info, much more help than any of the idiots who work for mh doc but I'le take it easy until my doc sees me agin just to be sur...ek, i'm tired...mh neds are puting my out.

      niite nigt
      I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

      Medications I CURRENTLY take:
      90 mgs Ms contin (45 mgs Am/PM)
      Percocet as needed
      Topomax 100mg day
      Ambien 10 mg bed
      desipramine 25 mgs




      If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
      Albert Einstein

      Comment


      • #4
        Tracey,

        I hope you get the help and answer that you need.

        Gentle Hugs (((((Tracey)))))

        Kara
        Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

        "One hour at a time, this was NOT my American Dream but it has to work out somehow."

        I also have some journals of my journeys, past and some present at:
        http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

        Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

        Comment


        • #5
          thanks Kara...you are so nice...Babs was very helpful..I didn't have a heart attack..ha, ha, ha,...as if...but figured out it was prob a rise in this enyzme because I have Fibro and trying to exercise. My belly hurts, had a flu bug so I haven't worked out in two days....See...I'm allergic to exercise...ha, ha, ha,....Oh,boy...I have the silleies...


          I gotta go...nite nite..
          I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

          Medications I CURRENTLY take:
          90 mgs Ms contin (45 mgs Am/PM)
          Percocet as needed
          Topomax 100mg day
          Ambien 10 mg bed
          desipramine 25 mgs




          If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
          Albert Einstein

          Comment


          • #6
            Tracey,

            Is there a change in Enzyme Levels if you have Fibro? I have no clue about how they actually diagnose it.

            I'm sorry to hear that you had a stomach bug. I hope you are feeling better soon.

            Kara
            Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

            "One hour at a time, this was NOT my American Dream but it has to work out somehow."

            I also have some journals of my journeys, past and some present at:
            http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

            Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

            Comment


            • #7
              don't know exactly...But...from what Babs said (and she spent alot of time expaining to me..) the CK level goes up when muscle tissue is being damaged. Heart attacks, for example, will cause the CK level to go up, but an extraordinary amount and they bind to a certain marker..(I don't quite have this all down...we were both post night meds the other night) My nurse who called was very vague. She said I maybe had a heart attack. HUH? Anyway, I looked it up, which caused the original question. And when you have something that can cause muscle inflammation, or injury to muscle, the CK level for skeletal muscle can go up. Fibro fits. In addition, I had a hell of a work out 12 hours before the test. I did some actual running, then other aerobic stuff. Then spent timein the pool with my daughter. The pool has a resistance area (they call it the lazy river) and she and I spent about 20 mins chasing each other in this pool until I crawled to the hot tub. so, that could have done it...Who knows?

              I am still getting used to this Fibro stuff. I've decided I don't like it very much. I had a good week. This last 3 days has sucked. I feel like someone has slammed me against a wall about 8 times, then stomped on my bladder for good measure. I'm trying to stretch but it hurts. My chiro, who usually helps me with this, has become very ill. I've posted he has bladder cancer. He is running a temp of 103 and has pneumonia. I talked with him yesterday and had to hold back my tears until I got off the phone. He sounded so sad. He said he is really looking at death now for the first time. I honestly don't know what I'll do without him. He has been a very special and unique friend for me through all the hardships I've had. He's been there when I've tried to hurt myself, stood up to my husband and told him to get his head on straight, and taught me alot about peace with myself. Maybe it is because it is the first person soooo close to me who is dying. though I don't think it gets any easier.

              Anyway...have a good night.
              I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

              Medications I CURRENTLY take:
              90 mgs Ms contin (45 mgs Am/PM)
              Percocet as needed
              Topomax 100mg day
              Ambien 10 mg bed
              desipramine 25 mgs




              If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
              Albert Einstein

              Comment


              • #8
                Tracey,

                I am so sorry to hear the news about your Doctor. My thoughts and prayers are with you.

                It's so difficult to lose a Doctor no matter what the circumstance, especially when they've helped us through so much in our ow lives.

                Kara
                Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

                "One hour at a time, this was NOT my American Dream but it has to work out somehow."

                I also have some journals of my journeys, past and some present at:
                http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

                Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

                Comment

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