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  • #1

    Question Re: "stuff" in urine today

    Hi guys

    well, share all, share alike... this is kinda gross but I need to ask... My bladder has been cantankerous lately, very much in pain. I thought it was because I was trying to back off of my morphine. I dropped down 30 mgs (from 270 to 240) in 2 1/2 weeks so I upped it again...Well pain is still bad, and I noticed this afternoon when I peed that I had clumps of blood in it. I had a vision of being on my period before I remembered I was Uterusless. This has happened twice now with about 3 or 4 clmps of blood. So...should I be like, calling my Uro? I reaally am sick of doc's and just want it to go away

    Thanks
    I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

    Medications I CURRENTLY take:
    90 mgs Ms contin (45 mgs Am/PM)
    Percocet as needed
    Topomax 100mg day
    Ambien 10 mg bed
    desipramine 25 mgs




    If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
    Albert Einstein
    Tags: None
  • #2
    Sorry you're having such a hard time. Personally if I had blood coming out in clumps in my urine you couldn't get me to call the uro fast enough. I would at least call in the morning and talk to the nurse and see what they say. Probably going to want you to come in and at least do a culture. Let us know what happens.
    Christine



    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
    I have tried every oral medication as well as rescue instills and DMSO.

    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
    Also proud mom to the best Bullmastiff on earth, Claus

    Comment

    • #3
      I agree that you should call your uro- it may be an infection.

      Comment

      • #4
        That is not normal. Please call your Dr., I am sure they would want to see you. Take Care of Yourself and let us know what happens.

        Comment

        • #5
          Yes, sorry, concur with the above posts. I definitely understand the wanting to avoid doctors, but I think you might need one... And hey, they might even be helpful! Sad, but IC has made it that I'm pleasantly surprised when medicine works for me.
          Hang in there,
          sending a hug & hoping you are feeling better soon!
          Kadi

          -------------------------------------------------------------
          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          ------------------------------------------------------


          New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
          Source - Pinterest
          "

          Current treatments:
          -IC diet
          -Elavil 50mg at night
          -Continuous use birth control pills (4-5 periods/year)
          -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
          -Pyridium if needed,
          -Pain medicine at bedtime daily, as needed during the day several times per week
          -Antibiotic when doing an instillation to prevent UTI
          -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
          -Dye Free Benadryl 50 mg at bedtime
          -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
          -Managing stress= VERY important!
          -Fur therapy: Hugging the cat!

          Comment

          • #6
            It does sound like you could have an infection --- I agree you need to see your doctor.

            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.             [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment

            • #7
              Yeah...duh..I'm so stoopid..I should remember by now...I have a standing order for antibiotics b/c I get infections after instillations...which I never do now but I still have the order, and have almost a whole order so I'll reorder and call the doc. It's not just spots of blood..wierd..reminds me of when I miscarrried (after the worst was over) just pieces of tissue , maybe that's why I can't pee easily...(talk about sitting on the toilet and getting frustrated..) I don't have a clue as to why it's doing this all the sudden..grr..I'm too the point with my body that nothing is surprising to me. I could have an alien baby pop out and it wouldn't freak me out..

              Tracey
              I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

              Medications I CURRENTLY take:
              90 mgs Ms contin (45 mgs Am/PM)
              Percocet as needed
              Topomax 100mg day
              Ambien 10 mg bed
              desipramine 25 mgs




              If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
              Albert Einstein

              Comment

              • #8
                I agree with the others, please call and get yourself to the doctors. Let us know how you are doing.

                Comment

                • #9
                  I called my uro this morning and described the "stuff" to her..my temp is normal and I've put myself on the anti biotics...last night the discomfort has continued, however the blood clumps have gone away...and i know it isn't just from one antibiotic pill...(of the 28 I need to take) so it must be some new thing I haven't experienced before...I know I am so darn used to te same thing over and over and over that I know anything unusual like this is going to freak me out. Have any of you ever had any thing like this happen? Does it mean like more damage in my bladder..? My uro sorta waffled on this and said she would like to see how I feel in a week and if the pain is still there "take a peek"...Oh Goody. I love in office cysto's. "sigh". Oh well...

                  I gotta shower and run an errand, yes life does go on, ain't it a ***** when your bladder is sloughing off? Ha, ha... anyway...I hope I don't spend Monday with a scope in my urethra...it's my birthday and I can't think of ANYTHING I really don't want to do less. (grumble) 42years and I feel like I;m 90...although I don't know what a 90 year feels like, ha! Hmm..I feel twice my age...not such a big deal when I was 10 and I could say that.
                  I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

                  Medications I CURRENTLY take:
                  90 mgs Ms contin (45 mgs Am/PM)
                  Percocet as needed
                  Topomax 100mg day
                  Ambien 10 mg bed
                  desipramine 25 mgs




                  If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
                  Albert Einstein

                  Comment

                  • #10
                    Tracey,

                    I hope you feel better over the weekend and won't need the in office cysto. Keep in mind the antibiotic that you are taking may not cover all of the possible infections that you could have. It's best to have your doctor oversee this and prescribe antibiotics. It can take several days after an antibiotic has been taken to see an infection. You could ask your doctor what you can do the next time something like that happens. They may take a urine culture and put you on antibiotics while you wait for the results that can take 48-72 hours to come back from the lab. After the results come back then they may switch antibiotics.

                    I hope by now you are feeling better.

                    Kara
                    Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

                    "One hour at a time, this was NOT my American Dream but it has to work out somehow."

                    I also have some journals of my journeys, past and some present at:
                    http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

                    Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

                    Comment

                    • #11
                      so far things have settled down has settled down in terms of bleeding...I am sore though. And feel blah. but I think that's my mood. Different story. Thank goodness the two days of bleeding are over...it's a bit disconcerting to see blood clumps every time you pee. I must be sore b/c It has to heal in there. I just wonder what triggered the whole thing.
                      I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

                      Medications I CURRENTLY take:
                      90 mgs Ms contin (45 mgs Am/PM)
                      Percocet as needed
                      Topomax 100mg day
                      Ambien 10 mg bed
                      desipramine 25 mgs




                      If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
                      Albert Einstein

                      Comment

                      • #12
                        Tracey,

                        I am glad to hear that the bleeding stopped. I understand how scary that must have been.

                        Praying for more restful, painfree, days ahead!

                        Kara
                        Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

                        "One hour at a time, this was NOT my American Dream but it has to work out somehow."

                        I also have some journals of my journeys, past and some present at:
                        http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

                        Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

                        Comment

                        • #13
                          Thanks Kara

                          It's my Birthday Today~ yay. I'm like a little kid...I still think everybody should know and send me bright packages they make me happy. But I will swap for a little nap on this gorgeous spring afternoon (it is never nice on my birthday...I'd lay on the grass but my eyes would swell and I'd be pretty for tonight) I told my husband and girls that instead of going out tonight, I want them to Plan and prepare my birthday dinner instead of the same ol same ol Olive Garden, Chevy's, Red robin...blah, blah. My Husband never makes dinner but that is not due to lack of skill. He is a very creative man. My youngest is whining about it. Wants to go out and eat an adult meal even though she eats like me. We waste a lot of money on our birthday dinners. My main reason for wanting them to make me dinner was to work as a family (And focus on me for Pete's sake) but also, we've had 4 birthdays in the past 6 weeks, each one with dinners for 60-80 bucks. The last one I just grabbed the check and paid it while my husband was in the bathroom. He was very happy. (we have a joint account for bills and 2 seperate accounts for our own "stuff")

                          I'm interested in my dinner...hmm. Should be an interesting experience. Anyway, I think I may be finally getting my weekend away with him. (anyone who knows my frustration with my husband) I asked him last night if we could do something on Friday night and he got a smirk and said "maybe...." We shall see.....:woohoo: or or

                          Take care...my head keeps falling forward
                          I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

                          Medications I CURRENTLY take:
                          90 mgs Ms contin (45 mgs Am/PM)
                          Percocet as needed
                          Topomax 100mg day
                          Ambien 10 mg bed
                          desipramine 25 mgs




                          If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
                          Albert Einstein

                          Comment

                          • #14
                            Christine



                            I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                            1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                            2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                            I have tried every oral medication as well as rescue instills and DMSO.

                            I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                            Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                            Also proud mom to the best Bullmastiff on earth, Claus

                            Comment

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