I am so EMBARRASED!

[Kara29]

I have a history of ovarian cysts but they usually don't bother me at all. I woke up this morning in Horrific Pain on my right hand side below my stoma. I was called into the Hospital. I had a cyst on the right ovary that burst and is leaking fluid. My OBGYN said that I should feel better in a week.

I am also having some really embarrassing pain due to a condition known as Clitodynia which is kind of a sister condition to Vestibulitis and PNE. It feel like a serious paper cut around the clitoris. I really did not want to discuss it but I am hoping that it could help others who may have it or have symptoms. I can not touch it, not even with underwear. I have to lie still and pray for it to end. I 've been having severe symptoms as with most of my other diseases right around ovulation and period time. Ice and Lidocane are being used along with Lyrica and Fentanyl (not much relief).

I am so embarrassed. It is at times like this that I thank God Every Second for my Disability. And for a wonderful Husband! I could not do this journey without him.

Kara

[ihurttoo]

Wow! I am sorry you have been having all that pain and had to go to the hospital. At least they found out what it was and hopefully, you will start to feel better now.

Please dont be embarrassed about the other. It is just a body part, like any other. To the OB/GYNs, it is just like seeing your toe would be to a Podiatrist. No big deal to them! I know it is hard to think of it like that, but it helps to know that's how they think of it.

I hope that your surgeries will help you alot and you will finally be able to reclaim your life.

Love and hugs,
Amy

[leelee88]

I agree with Amy on that Kara, dont be embaressed.. You mentioned Clitordynia, well that is what my GYN said I had, I dont have the pain all the time but when I do I cannot even wear panties all I can do is lay on the bed sprawed out... Its awful, I am so sorry you are going through this along with everything else, It just does not seem fair.. (((((((((((((hugs))))))))))

Ronda

[humpieumpumkin]

Dont be embarassed Kara!

You have been through so much, it bothers me deeply to see you are still suffering. I also have problems with my clitorous. It gets a twitchy aroused feeling one in a while that drives me bonkers! I hope you feel better soon, and the decompression surgery is successful!

Erika

[Berkshire Road]

Oh, Kara, it's nothing to be embarassed about. But I know how sensitive you are and that you actually are embarassed, so I just want to say, it was very brave and very generous to share that on the boards, in case it might help someone else.

[Mel53H]

Please don't be embarrased!

[ICNDonna]

I hope tomorrow is better for you.

Donna

[SharonA]

Kara...Sending you (((hugs))) and lots of prayers.

[stac7_8]

Please don't be embarrased....it is people like you that have helped so many others. I thank god for this website every day and for everyone on here that replies to messages and posts them.

It was very brave of you and I hope u feel better soon. Take care

[Moonheart]

I have that as well and it's miserable, as well as the unwanted arousal that nothing really takes away. I've considered a female circumcision at times, but I probably couldn't get that. (Could I?)

I hope you feel better. It seems like some of us just keep suffering without relief and it's hard to understand why. I couldn't make it without my God either.

[Kara29]

I feel like its time to say that I am just broken from "THE WAIST DOWN". Each time we seem to be coming to some conclusions as to what is happening and how to treat it, something else comes up "DOWN" there.



At least we are all in this together and we can help each other.

Kara

[Moonheart]

Yeah, I'm thinking from the neck down. *pout*

Uh oh. I've got a pity party coming on! Darnit. I'd better go make a pot o comfort food.

[sandramac]

Sending you 'hugs & kisses.
Sandra & family

[Bianchi]

Klara, when I had it, about a year ago. I finally turned on a fan and pointed it in a certain direction to hit directly, while laying on the bed. It seemed to give me some relief. I feel for you, you have been through so much and you're so young. Hope you're feeling better tomorrow.
Take care,
Bianchi

[Kara29]

Pudendal Nerve Entrapment (PNE)

I have talked with one of my Doctors regarding this. Clitorodynia is as a direct result of Pudendal Nerve Entrapment (PNE). The only "cure" for it is Pudendal Nerve Decompression Surgery. This is extremely controversial and only done in 3 places in the US.

The dilema is that I have PNE with Vestibulodynia and have to have both surgeries. The Surgeon that is closest to me does not do PNE Decompression. The Surgeon that is far from me and also the most qualified Specialists to take care of me, does both Surgeries at once. The Surgery and Hospital stay is covered by my insurance. It's the lodging. I would be staying in the Hospital for a week and then have to stay locally for another week.

I am so close and have found some answers that for 10 years have been unknown so I guess I should be grateful for that.

I am pretty distessed about this. I'm in so much pain I am thinking about risking my Disability to find a job (standing up) so I can save up. I know this is irrational and probably not logical. I would probably lose more money in the long run if I do this, not to mention the loss of my Disability. It also took me 3years to get the Disability and is something I wish not to repeat.

I'm trying to reason this out in my head but I am having so much trouble....

I needed to talk to someone. My Mom just went out on her own Disability for her Cancer so our family is not as stable as we were.


Kara