Check out the sticky attached to the front of the Pudendal Nerve Condition page.
Here’s a Comprehensive Website that gives you Everything you wanted to know about (PN), Pudendal Neuralgia (PN), or Pudendal Nerve Entrapment (PNE) from what it is, some Facts and Questions from patients, what the symptoms are, diagnosis, treatment Options, for example it goes into detail regarding such topics: Lifestyle changes, Medication Management, Physical Therapy, Botox, Pudendal Nerve Blocks, Pudendal Nerve Decompression Surgery, Neuromodulation and information about the Intrathecal Pain Pump. The site even talks about Emotional Aspects that go along with having PN/PNE, the Anatomy of the Pudendal Nerve, Related Conditions that have very similar Symptoms to IC, A List of North American Doctors who diagnose and treat PN/PNE, a list of Physical Therapists who treat it, Personal PN/PNE Stories, and even a Pain Scale. The link to this website is as follows:
http://www.pudendalhelp.com/home.html
Thank You to the Doctors and Administrators who put this site together.It is to them that I owe the greatest gratitude for putting it up on the web for all Chronic Pelvic Pain Sufferers to view. I have used it in a forum that is just learning about PNE/PN as it has become increasingly similar to those of us that also have Interstitial Cystitis. Thank you for putting together such a comprehensive site. It’s a lot of information but it could save an IC person from getting their bladders removed which is very drastic and in my case as well as many others, we may not have known what caused the pain because it was so close to the bladder that Doctors had and currently have trouble not seeing other possibilities for the their patients. I want to bring this to the table and forefront so that they all take one more step before drastic operations. This is meant for patients and doctors to start discussing this disease together as a team.
So take a look and print out any information you feel may help you and your doctors in your quest for pain reduction.
You are NOT ALONE! I had similar symptoms and had the PNE Decompression Operation in May. I've gained the ability to sit for 4 hours at a time on a good day as well as reduced clitoral symptoms and most recently a reduced pain upon having a bowel movement. I did a lot of research before having this surgery and I'm grateful that I did the research because it has saved me from worsening symptoms. It takes up to 2 year to heal from this surgery so the results are slow to come. It takes a lot of patience and will to keep going. I am on month number 8. I pray for continued relief of other PNE symptoms and pain relief for my future. ONE DAY AT A TIME!!!!!!!!! ONE HOUR AT A TIME!!!
Kara

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