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  • Side effects to new medssss

    First let me say that I hate being a genine pig!!!

    I saw my uro and he started me on vesicare. Well I took it for 1 full week and just 2 days after I started it, I noticed that I was voiding less. Which is a plus....well the side effect was that I could not void when I felt like I had to. Is that weird or what. I had to sit there for what felt like for ever until I finally could void. I put a call into the URO on Friday...but I did not hear back from them yet.

    I saw my pain dr...he started me on Lyrica. First the directions say to take it 2x's a day...well I can't cause it makes me really tired. So I just took 1 @ night. Well I am able to sleep all night:woohoo: but the side effect is when I do wake up in the am I am in so much pain cause I haven't voided all night.

    I don't want to start the day off in pain if I don't have to u know.

    I mean I am damned if I do and damned if I don't.

    Well that's my story and I'm sticking to it. lol
    Live your life to YOUR best, and Love to YOUR best!!!



    DX in 03 with Shingles
    Removal of Left ovary due to Cyst in 2005,
    I have had cyst since I started my period as a child age 12
    Hysterecotmy December 06
    IC DX March 07 by PST
    2 "rescue" instills in March 07
    Cyco May 07 confirmed IC
    Uro study June 07
    1st Pain Block July 17,08
    Hydro/Cysto Nov 11, 2008
    12-11-08 was told I had alot of inflamation

    Meds: Allergic to 6 things
    Premarin......taking the gen cause I get it at Walmart for 4$$
    Presique for my drepression :woohoo:
    Abilify for my depression
    Adderall ...found out I'm ADD...makes sense now
    Kolopin for anxiety
    Noroco for my pain
    Valtrex for my shingles as needed

    Sorry if my spelling is off on the meds [/FONT]


    http://community.webshots.com/user/s...host=community

  • #2
    I would get off the vescare and give the lyrica a chance to kick in. My doctor said the lyrica helps with pain and frequency..Ask your doctor about that..
    Hugs
    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


    Link to Patient Handbook:
    http://www.ic-network.com/handbook/

    Diet Reference Sheet:
    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Comment


    • #3
      I hope your doctor calls back this morning. I think I would place another call.

      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment


      • #4
        Originally posted by leelee88 View Post
        I would get off the vescare and give the lyrica a chance to kick in. My doctor said the lyrica helps with pain and frequency..Ask your doctor about that..
        I did not know that the Lyrica helped with the frequency!!! That's good news. I will talk to the URO about it. Thanks for the info.

        Thanks to all for the kind words and hugs
        Live your life to YOUR best, and Love to YOUR best!!!



        DX in 03 with Shingles
        Removal of Left ovary due to Cyst in 2005,
        I have had cyst since I started my period as a child age 12
        Hysterecotmy December 06
        IC DX March 07 by PST
        2 "rescue" instills in March 07
        Cyco May 07 confirmed IC
        Uro study June 07
        1st Pain Block July 17,08
        Hydro/Cysto Nov 11, 2008
        12-11-08 was told I had alot of inflamation

        Meds: Allergic to 6 things
        Premarin......taking the gen cause I get it at Walmart for 4$$
        Presique for my drepression :woohoo:
        Abilify for my depression
        Adderall ...found out I'm ADD...makes sense now
        Kolopin for anxiety
        Noroco for my pain
        Valtrex for my shingles as needed

        Sorry if my spelling is off on the meds [/FONT]


        http://community.webshots.com/user/s...host=community

        Comment


        • #5
          side effects

          I was wondering what anyone might take that has a problem with codiene.
          It makes me itch and I don't know what to ask for now. Any suggestions?
          Pam

          Comment


          • #6
            I also would stop the vescare. I took lyrica and it made my bladder so much worse. I hope it helps you though, as I have heard that it does help some people with IC. I think because my nerves are all messed up as it is, I reacted badly to the lyrica since it is a nerve drug. Good Luck and hope it starts working for you. Oh, and just know that it can take about 4 weeks for the lyrica to fully start working.
            Jen

            Comment


            • #7
              Please work with your doctor

              Please be sure to check with your doctor on your medications. If you're having a severe reaction, it's probably a good idea to stop a medication, but please - please call your doctor ASAP for direction. If your doctor is absolutely not available, your pharmacist may be able to answer a question for you.

              And if you're sensitive to a medication, such as codeine, talk with your doctor about substitutes that will help.

              We are able to share our own experiences, but are not qualified to offer direct advice so you absolutely need to get in touch with your physician.


              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

              Comment


              • #8
                I'm with Donna. Thank you for clarifying what we should do if we have questions about what to do with our medications.


                Kara
                Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

                "One hour at a time, this was NOT my American Dream but it has to work out somehow."

                I also have some journals of my journeys, past and some present at:
                http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

                Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

                Comment


                • #9
                  Originally posted by ICNDonna View Post
                  Please be sure to check with your doctor on your medications. If you're having a severe reaction, it's probably a good idea to stop a medication, but please - please call your doctor ASAP for direction. If your doctor is absolutely not available, your pharmacist may be able to answer a question for you.

                  And if you're sensitive to a medication, such as codeine, talk with your doctor about substitutes that will help.

                  We are able to share our own experiences, but are not qualified to offer direct advice so you absolutely need to get in touch with your physician.


                  Donna

                  Thanks a bunch Donna...that is a very good idea!!!!
                  Live your life to YOUR best, and Love to YOUR best!!!



                  DX in 03 with Shingles
                  Removal of Left ovary due to Cyst in 2005,
                  I have had cyst since I started my period as a child age 12
                  Hysterecotmy December 06
                  IC DX March 07 by PST
                  2 "rescue" instills in March 07
                  Cyco May 07 confirmed IC
                  Uro study June 07
                  1st Pain Block July 17,08
                  Hydro/Cysto Nov 11, 2008
                  12-11-08 was told I had alot of inflamation

                  Meds: Allergic to 6 things
                  Premarin......taking the gen cause I get it at Walmart for 4$$
                  Presique for my drepression :woohoo:
                  Abilify for my depression
                  Adderall ...found out I'm ADD...makes sense now
                  Kolopin for anxiety
                  Noroco for my pain
                  Valtrex for my shingles as needed

                  Sorry if my spelling is off on the meds [/FONT]


                  http://community.webshots.com/user/s...host=community

                  Comment


                  • #10
                    HI! Lyrica works well for nerve and for bladder pain.....but it does make you very sleepy. I started off with 1 pill in the morning.....1 at lunchtime and 2 at bedtime....Then I was hurting by dinner time. Also it caused severe acid reflux. So now I'm taking Neurontin and that's causing my feet to swell and causing weight gain......so I know the feeling of not being able to win this medication war!

                    Double Spinal Cord Stimulator surgery 8/09
                    Unsuccessful MiniArc sling surgery 12/07
                    Dx'd Hypothyroid
                    Dx'd Chronic Axonal Neuropathy & Myopathy
                    June 2007
                    Dx'd IC May 2006 (after suffering for 25+ yrs!)
                    First Cysto 1979
                    First Hydro 1981 (Many treatments since then!)
                    Collagin"Durasphere" injections for urethra
                    Gall bladder surgery Aug. 2004
                    Gastric Bypass Dec. 2004
                    Dx'd: Barrett's Esphogus July 2004
                    Dx'd: Vaginal Atrophy 2005
                    Bladder surgery 2000
                    Dx'd: IBS 2000
                    Hysterectomy (fibroids) 1999
                    Laminectomy 1989
                    Dx'd: Degerative Disk Disorder 1989

                    For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
                    I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

                    Comment


                    • #11
                      Originally posted by stac7_8 View Post
                      First let me say that I hate being a genine pig!!!

                      I saw my uro and he started me on vesicare. Well I took it for 1 full week and just 2 days after I started it, I noticed that I was voiding less. Which is a plus....well the side effect was that I could not void when I felt like I had to. Is that weird or what. I had to sit there for what felt like for ever until I finally could void. I put a call into the URO on Friday...but I did not hear back from them yet.

                      I saw my pain dr...he started me on Lyrica. First the directions say to take it 2x's a day...well I can't cause it makes me really tired. So I just took 1 @ night. Well I am able to sleep all night:woohoo: but the side effect is when I do wake up in the am I am in so much pain cause I haven't voided all night.

                      I don't want to start the day off in pain if I don't have to u know.

                      I mean I am damned if I do and damned if I don't.

                      Well that's my story and I'm sticking to it. lol
                      The Vesicare seemed like it was going to be good for me at first. But after being on it for a week i started not being able to void, or it would be very slow and I would have to bare down to go. NOT GOOD! Then I started taking it every other day, still noticed a problem started swelling up around ankles and legs. So I had to stop using it. I will only take one if I have to go on a long drive. It does work for that.
                      Endometriosis,Fibromyalgia, Severe Adhesions-
                      3 c-sections, Particial Hysterecotmy,Laporoscopy for cysts, Appendectomy, R-ovary removed, IBS, Acid Reflux, Asthma, and the worst of all IC


                      Patty

                      Comment


                      • #12
                        Patty,

                        Sorry the Vesicare didn't work long term for you. It's nice to have something for those pesky car rides though. At least something positive came out of that whole experience.

                        Kara
                        Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

                        "One hour at a time, this was NOT my American Dream but it has to work out somehow."

                        I also have some journals of my journeys, past and some present at:
                        http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

                        Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

                        Comment


                        • #13
                          There are a lot of alternatives to products that contain codiene. For instance, I use the fentanyl patch (aka Duragesic). Also, I am not sure, but just a step up from Codiene are the Lortab/Vicodin products that contain varying amounts of hydrocodone. I am not sure if this creates an allergy though...so asking your pharmacist or doctor is best. I was also on Percocet, which is Oxycodone and Tylenol.

                          I hope you find the right medication for some relief. Good Luck and we're praying for you.
                          Diagnosed in 2007, but had IC symptoms since 2002. My current regimen includes: home instillations of Marcaine, Heparin and Solu-Medrol plus vaginal valium suppositories nightly. I also use Tramadol for pain as needed.

                          Comment

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