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  • VESICARE for frequency

    My uro started me on Vesicare 5/16/07. I have been on it a week and my frequency has diminished from every hour to every two to three hours except after I have a bowel movement. Anyway, after 6 days, my stomach started getting a lot of gas. And, I am constipated after being on Vesicare.

    What do IC patients take for constipation problems that don't bother IC?
    bunnykinb

    6/04 dx Mild IC; 3/06 2nd hydro/cysto w/2nd uro; Moderate IC now. IBS dx 11/03. 6/08 dx Vulva Vestibulitis/Pelvic Floor Spasms. 7/20/15 Feels like I have moderate IC now. Burning again.

    tried & failed treatments: Urocit K 2x/day, Prelief & Atarax 25 mg 3/05-6/06; elavil 10mg 11/30/06-2/28/07 (stopped due to hunger); elmiron orally but had throat tightness;heparin instills 1x/mo 9/04-2/05;elmiron instills every 2 wks 7/05-2/06;20 DMSO 7/28/06-9/07.nortriptyline 10mg 4/07-10/07current meds/treatments:Tofrinal 25mg;Yasmin bc. Heparin instills every 2 weeks 2/08-present. Mix: 8cc lidocaine, 8cc heparin (40,000 units), & 3cc sodium bicarb. main symptoms: frequency & labia/clitorial burning


  • #2
    Milk of Magnesia, store brand works just as good as brand name.

    Erika
    IC diagnosed officially via cysto/urodynamics 1/26/07

    Grade II Endometriosis diagnosed via lap 12/11/07

    "Fall down seven times, Stand up eight."

    "Life is a tragedy for those who feel and a comedy for those who think."

    Current Treatments:
    Interstim Since 5/25/07!
    Birth Control

    Comment


    • #3
      I'm on Vesicare as well, and noticed it too, but after a day or 2 I'll have a bowel movement. (mainly due to having IBS-D)--no fun. Other than that, Vesicare is a wonder drug for me! I use to go at night 6-7times now its 1 maybe 2 times. During the day 6? Of course, if I'm in a flare, all of this changes.

      Comment


      • #4
        I know this sound weird, but when I have a bowel movement, I always have to pee within 10 minutes whether or not I am constipated. Anyone else like this?

        Mary,

        Vesicare doesn't help with your burning, right? I had asked my uro if it was possible that I have VV as well, he really didn't respond. I asked him again and he said maybe Vesicare would help that too. I highly doubt that. I don't think the labia burning is all IC related. I think this is a gyno issue yet I have brought this up to my primary care doc. He had given me a cream with steroids but it doesn't help.

        Have you been on Detrol LA as well? I tried it and it made me so dry mouth it bothered me.

        Thanks to all.
        bunnykinb

        6/04 dx Mild IC; 3/06 2nd hydro/cysto w/2nd uro; Moderate IC now. IBS dx 11/03. 6/08 dx Vulva Vestibulitis/Pelvic Floor Spasms. 7/20/15 Feels like I have moderate IC now. Burning again.

        tried & failed treatments: Urocit K 2x/day, Prelief & Atarax 25 mg 3/05-6/06; elavil 10mg 11/30/06-2/28/07 (stopped due to hunger); elmiron orally but had throat tightness;heparin instills 1x/mo 9/04-2/05;elmiron instills every 2 wks 7/05-2/06;20 DMSO 7/28/06-9/07.nortriptyline 10mg 4/07-10/07current meds/treatments:Tofrinal 25mg;Yasmin bc. Heparin instills every 2 weeks 2/08-present. Mix: 8cc lidocaine, 8cc heparin (40,000 units), & 3cc sodium bicarb. main symptoms: frequency & labia/clitorial burning

        Comment


        • #5
          I really don't have a lot of burning, so I can't help you out there.
          I have tried Detrol-LA, Flomax; and a handful of others, but they had side effects that I couldn't take. This is the first one that has really helped me, and it only took a handful of days to start showing any improvement; been on it for about 3 months now.

          Comment


          • #6
            Mary,

            What were the side effects from detrol la that stopped you from continuing it? What side effects do you have from Vesicare? I agree, Vesicare stopped the frequency alot better than detrol la.

            Thanks.
            bunnykinb

            6/04 dx Mild IC; 3/06 2nd hydro/cysto w/2nd uro; Moderate IC now. IBS dx 11/03. 6/08 dx Vulva Vestibulitis/Pelvic Floor Spasms. 7/20/15 Feels like I have moderate IC now. Burning again.

            tried & failed treatments: Urocit K 2x/day, Prelief & Atarax 25 mg 3/05-6/06; elavil 10mg 11/30/06-2/28/07 (stopped due to hunger); elmiron orally but had throat tightness;heparin instills 1x/mo 9/04-2/05;elmiron instills every 2 wks 7/05-2/06;20 DMSO 7/28/06-9/07.nortriptyline 10mg 4/07-10/07current meds/treatments:Tofrinal 25mg;Yasmin bc. Heparin instills every 2 weeks 2/08-present. Mix: 8cc lidocaine, 8cc heparin (40,000 units), & 3cc sodium bicarb. main symptoms: frequency & labia/clitorial burning

            Comment


            • #7
              on the vesicare...I was also on that and it REALLY helped me with the frequency....but after about 2 days....when I had the urge to go....I couldn't. It was strange. I would have to sit there and really think about it. After a full week I just called the doc and told them, and now i'm on something new.

              But best wishes for you on the vesicare
              Live your life to YOUR best, and Love to YOUR best!!!



              DX in 03 with Shingles
              Removal of Left ovary due to Cyst in 2005,
              I have had cyst since I started my period as a child age 12
              Hysterecotmy December 06
              IC DX March 07 by PST
              2 "rescue" instills in March 07
              Cyco May 07 confirmed IC
              Uro study June 07
              1st Pain Block July 17,08
              Hydro/Cysto Nov 11, 2008
              12-11-08 was told I had alot of inflamation

              Meds: Allergic to 6 things
              Premarin......taking the gen cause I get it at Walmart for 4$$
              Presique for my drepression :woohoo:
              Abilify for my depression
              Adderall ...found out I'm ADD...makes sense now
              Kolopin for anxiety
              Noroco for my pain
              Valtrex for my shingles as needed

              Sorry if my spelling is off on the meds [/FONT]


              http://community.webshots.com/user/s...host=community

              Comment


              • #8
                Staci,

                What type of bladder medication for frequency are you on now? I know what you mean by your feeling of having to pee but nothing comes out. I had that a couple of times already. It is weird.
                bunnykinb

                6/04 dx Mild IC; 3/06 2nd hydro/cysto w/2nd uro; Moderate IC now. IBS dx 11/03. 6/08 dx Vulva Vestibulitis/Pelvic Floor Spasms. 7/20/15 Feels like I have moderate IC now. Burning again.

                tried & failed treatments: Urocit K 2x/day, Prelief & Atarax 25 mg 3/05-6/06; elavil 10mg 11/30/06-2/28/07 (stopped due to hunger); elmiron orally but had throat tightness;heparin instills 1x/mo 9/04-2/05;elmiron instills every 2 wks 7/05-2/06;20 DMSO 7/28/06-9/07.nortriptyline 10mg 4/07-10/07current meds/treatments:Tofrinal 25mg;Yasmin bc. Heparin instills every 2 weeks 2/08-present. Mix: 8cc lidocaine, 8cc heparin (40,000 units), & 3cc sodium bicarb. main symptoms: frequency & labia/clitorial burning

                Comment


                • #9
                  Bunny-

                  Sorry I sure did forget to put that in there. lol lol Sanctura is what its called.

                  Honestly I have only taken it for a few days. I'm kinda scared/nervous about taking it. I'm a stay at home mom right now and the frequency to me is not a huge issue. I mean yes I have to void about 20x's a day or more but I can go when I need to. The only time I have an issue is when I'm not at home you know. Which really right now is not that much.

                  I'm going to talk to my uro about the Lyrica that I'm taking (my pain doc gave to me) I have seen on threads here about icers who say that it has helped them with freqency. I have been taking it for almost a month, I have not noticed the help with the frequency.....but at the same time I'm not taking it 2x's a day. I can only take it at night, cause it makes me so tired and loopy. But the way the pain doc explained it to me was we have to get it to a baseline and then I might see some improvement in my pain.

                  I really hate having all these meds to take and the side effects. I feel like a science project sometimes. Sorry to just go on.

                  I hope you have success with the med. For the buring....have you tried AZO they are OTC....ur voiding will turn orange but that helps me!!
                  Live your life to YOUR best, and Love to YOUR best!!!



                  DX in 03 with Shingles
                  Removal of Left ovary due to Cyst in 2005,
                  I have had cyst since I started my period as a child age 12
                  Hysterecotmy December 06
                  IC DX March 07 by PST
                  2 "rescue" instills in March 07
                  Cyco May 07 confirmed IC
                  Uro study June 07
                  1st Pain Block July 17,08
                  Hydro/Cysto Nov 11, 2008
                  12-11-08 was told I had alot of inflamation

                  Meds: Allergic to 6 things
                  Premarin......taking the gen cause I get it at Walmart for 4$$
                  Presique for my drepression :woohoo:
                  Abilify for my depression
                  Adderall ...found out I'm ADD...makes sense now
                  Kolopin for anxiety
                  Noroco for my pain
                  Valtrex for my shingles as needed

                  Sorry if my spelling is off on the meds [/FONT]


                  http://community.webshots.com/user/s...host=community

                  Comment


                  • #10
                    Is Sanctura the brand name? 20 times a day is alot and if you were working, it makes it all the worse. I work part time. I was going every 45 minutes to an hour. Since being on Vesicare, I last went today at 7:30 am and here it is almost 11:00 am. So there has been a dramatic improvement. I am worried about the blurry vision. I have been very gasey and at work it means having to go into the restroom even if I don't need to use it. I never know who will walk into my office and be blown away by the fumes.

                    I still have burning going on though and it isn't the urethra; it is the labias.
                    bunnykinb

                    6/04 dx Mild IC; 3/06 2nd hydro/cysto w/2nd uro; Moderate IC now. IBS dx 11/03. 6/08 dx Vulva Vestibulitis/Pelvic Floor Spasms. 7/20/15 Feels like I have moderate IC now. Burning again.

                    tried & failed treatments: Urocit K 2x/day, Prelief & Atarax 25 mg 3/05-6/06; elavil 10mg 11/30/06-2/28/07 (stopped due to hunger); elmiron orally but had throat tightness;heparin instills 1x/mo 9/04-2/05;elmiron instills every 2 wks 7/05-2/06;20 DMSO 7/28/06-9/07.nortriptyline 10mg 4/07-10/07current meds/treatments:Tofrinal 25mg;Yasmin bc. Heparin instills every 2 weeks 2/08-present. Mix: 8cc lidocaine, 8cc heparin (40,000 units), & 3cc sodium bicarb. main symptoms: frequency & labia/clitorial burning

                    Comment


                    • #11
                      Bunny: With the Detrol-La I had mainly the dry mouth, plus it didn't help me at all. Most of the other meds that the doctors put me on didn't help either. This is the only one (Vesicare) that helps. the only thing is, like Stacy has said, there are times, that I have the urge to go to the bathroom and I just sit there and do nothing!!

                      Comment


                      • #12
                        Hey Bunny:

                        Yes that is the brand name for it Sanctura. I think 20 times is alot also but being at home....it really doesn't bother me like it would if I was working u know...out side the home. Well I do work a lil...I'm a photographer, but when I have a session or a wedding I take potty breaks when possible.

                        I'm sorry about the buring u r having, I have never had that type, just major itching. For that I use Summer's eve wash, cause I found out years ago that I'm allergic to soap, bubble stuff, colgan. It has cut down on my yeast and bact infections. No they have not stopped cause of course you can't stop them, but it is WAY better then when I was a teenager. I used to get them all the time. every month I believe.

                        Take care and PM me if you want any time!!
                        Live your life to YOUR best, and Love to YOUR best!!!



                        DX in 03 with Shingles
                        Removal of Left ovary due to Cyst in 2005,
                        I have had cyst since I started my period as a child age 12
                        Hysterecotmy December 06
                        IC DX March 07 by PST
                        2 "rescue" instills in March 07
                        Cyco May 07 confirmed IC
                        Uro study June 07
                        1st Pain Block July 17,08
                        Hydro/Cysto Nov 11, 2008
                        12-11-08 was told I had alot of inflamation

                        Meds: Allergic to 6 things
                        Premarin......taking the gen cause I get it at Walmart for 4$$
                        Presique for my drepression :woohoo:
                        Abilify for my depression
                        Adderall ...found out I'm ADD...makes sense now
                        Kolopin for anxiety
                        Noroco for my pain
                        Valtrex for my shingles as needed

                        Sorry if my spelling is off on the meds [/FONT]


                        http://community.webshots.com/user/s...host=community

                        Comment


                        • #13
                          I just counted how many restroom trips I had on a regular work day. 8 plus 6 at home. That is 14 times. Today in the morning, I didn't have to go until 3 hours. I was trying to get in my water for the day. I had to go at 2pm then 45 minutes later, I had to go again.

                          Have any of you asked the doctor why you have the urge to go but nothing comes out while being on Vesicare? I go back to my uro next month.
                          bunnykinb

                          6/04 dx Mild IC; 3/06 2nd hydro/cysto w/2nd uro; Moderate IC now. IBS dx 11/03. 6/08 dx Vulva Vestibulitis/Pelvic Floor Spasms. 7/20/15 Feels like I have moderate IC now. Burning again.

                          tried & failed treatments: Urocit K 2x/day, Prelief & Atarax 25 mg 3/05-6/06; elavil 10mg 11/30/06-2/28/07 (stopped due to hunger); elmiron orally but had throat tightness;heparin instills 1x/mo 9/04-2/05;elmiron instills every 2 wks 7/05-2/06;20 DMSO 7/28/06-9/07.nortriptyline 10mg 4/07-10/07current meds/treatments:Tofrinal 25mg;Yasmin bc. Heparin instills every 2 weeks 2/08-present. Mix: 8cc lidocaine, 8cc heparin (40,000 units), & 3cc sodium bicarb. main symptoms: frequency & labia/clitorial burning

                          Comment


                          • #14
                            Has anyone else had the issue when you use the restroom 2-3 hours, then you have to go again in another hour while on Vesicare? The every 2 hour trips to the restroom aren't consistent for me. I went to the movies and had to use the restroom at 3pm and then 5pm. No sooner I was out, I already had to go at 5:45pm.

                            Thanks.
                            bunnykinb

                            6/04 dx Mild IC; 3/06 2nd hydro/cysto w/2nd uro; Moderate IC now. IBS dx 11/03. 6/08 dx Vulva Vestibulitis/Pelvic Floor Spasms. 7/20/15 Feels like I have moderate IC now. Burning again.

                            tried & failed treatments: Urocit K 2x/day, Prelief & Atarax 25 mg 3/05-6/06; elavil 10mg 11/30/06-2/28/07 (stopped due to hunger); elmiron orally but had throat tightness;heparin instills 1x/mo 9/04-2/05;elmiron instills every 2 wks 7/05-2/06;20 DMSO 7/28/06-9/07.nortriptyline 10mg 4/07-10/07current meds/treatments:Tofrinal 25mg;Yasmin bc. Heparin instills every 2 weeks 2/08-present. Mix: 8cc lidocaine, 8cc heparin (40,000 units), & 3cc sodium bicarb. main symptoms: frequency & labia/clitorial burning

                            Comment


                            • #15
                              Some medications can cause more urgency and frequency for some IC patients. It’s important to talk to the doctor that is having you take the medication. You may want to start keeping a journal of your symptoms. That way you and your doctor can talk about it and make any changes or switch you to a different medication if needed.

                              I hope you get down to the bottom of this and get some relief soon!

                              Good Luck to you

                              Kara
                              Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

                              "One hour at a time, this was NOT my American Dream but it has to work out somehow."

                              I also have some journals of my journeys, past and some present at:
                              http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

                              Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

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