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  • #1

    Where's Kara ?

    I have not been on in a couple of weeks. Was wondering how Kara & her Mom are doing? Has anyone heard from her ? I know she had some appt & other things to do , just wondering if she's Ok. I've called her home but just got the answering machine. hope she's Ok . Let me know if anyone has heard from her.
    Hugs Sandra
    "Never Give Up."

    To view pictures of my creative interests and Maine Coon kittens click here: http://www.flickr.com/photos/[email protected]/

    My Photobucket Link:
    http://s237.photobucket.com/albums/f...ramack_photos/
    Tags: None
  • #2
    I have not seen her online or on the ICN..
    Hugs
    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


    Link to Patient Handbook:
    http://www.ic-network.com/handbook/

    Diet Reference Sheet:
    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Comment

    • #3
      I know her sister was going to get married around now and a good freind of hers also, so hopefully that is why she has not been online.

      Comment

      • #4
        Thank's ladies!
        Hugs Sandra
        "Never Give Up."

        To view pictures of my creative interests and Maine Coon kittens click here: http://www.flickr.com/photos/[email protected]/

        My Photobucket Link:
        http://s237.photobucket.com/albums/f...ramack_photos/

        Comment

        • #5
          Thanks to Judith's reminder, I now recall that double weddings... hope she is having a blast, and not flairing.
          'The will of God will never take you where the Grace of God will not protect you.'

          Comment

          • #6
            (((((miss You Kara)))))))

            (((((((((((and More))))))))

            Comment

            • #7
              Weddings

              I've missed you all so much. I'm so glad to finally be back at home and sitting still. The wedding of my roomate is not much to talk about other than taking just about everything I had with two days to catch up before leaving for my Sister's. My Sister's Wedding was so beautiful and fun. I'm very tired. I will try to catch up on you all in the next few days I hope you are well and pain free .

              Love and Hugs!

              (Photos of my Sister's Wedding below)

              Goodnight Sweetheart


              Dancing the Night Away


              Wedding Party


              The rest of the photos can be viewed on my photo album. http://s142.photobucket.com/albums/r115/Karalynnree/

              Kara
              Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

              "One hour at a time, this was NOT my American Dream but it has to work out somehow."

              I also have some journals of my journeys, past and some present at:
              http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

              Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

              Comment

              • #8
                You look wonderful and you look like you are having the time of your life.

                Comment

                • #9
                  Kara you looked great, and so dose your mom... and the wedding party but you know what I mean. You all looked like you were having the time of your lives.
                  welcome back, we really missed you.
                  'The will of God will never take you where the Grace of God will not protect you.'

                  Comment

                  • #10
                    Love the pictures Kara! Thanks!
                    Faith, Hope, and Love,
                    Katrina

                    I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back!

                    IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                    or find me on facebook http://www.facebook.com/kat671?ref=profile
                    Be the Miracle! & Pay it Forward!
                    [email protected] please contact me...I am here to help!

                    Comment

                    • #11
                      Great pictures! Thank you for sharing.

                      Hugs,
                      Donna
                      Stay safe


                      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                      Have you checked the ICN Shop?
                      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                      Patient Help: http://www.ic-network.com/patientlinks.html

                      Sub-types https://www.ic-network.com/five-pote...markably-well/

                      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.                       [3MG]

                      Anyone who says something is foolproof hasn't met a determined fool

                      Comment

                      • #12
                        back, Kara.
                        Sharon

                        Shopping??? Did someone mention shopping? I'll get my hat... ;-)

                        Where I can be found most days.



                        Link to the ICN Patient Handbook:
                        http://www.ic-network.com/handbook/

                        Link to the IC Diet:
                        http://www.ic-network.com/diet/


                        IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                        Comment

                        • #13
                          welcome back.....i hope you had a great time!
                          Erika
                          wife to Jeremy
                          mom to Emma (3-8-05)
                          and Natalie (7-23-07)


                          Meds i'm currently taking:
                          Lortab as needed for pain

                          Meds that did not help:
                          Detrol LA
                          Lexapro (caused urgency)
                          Amatryptaline 10mg once a day (helped IC but made me feel like CRAP)


                          Comment

                          • #14
                            glad you had an awesome time Kara! you desreved it!
                            Blessings & Hugs,
                            Eva:woohoo:

                            Comment

                            • #15
                              hows it going?
                              Erika
                              wife to Jeremy
                              mom to Emma (3-8-05)
                              and Natalie (7-23-07)


                              Meds i'm currently taking:
                              Lortab as needed for pain

                              Meds that did not help:
                              Detrol LA
                              Lexapro (caused urgency)
                              Amatryptaline 10mg once a day (helped IC but made me feel like CRAP)


                              Comment

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