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  • In the hospital

    I started having severe upper abdominal pain at about 3 this morning. I'm now in the hospital w/pancreatitis. I don't even know anything about it exept that it is VERY painful. They are getting ready to put me on a pain pump, thank God!!!
    Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
    Lexapro-20 mg
    Aciphex
    Ambien-as needed
    Percocet-7.5 up to 3 per day as needed
    Valium-10 mg x2 per day
    Phenergan-1 at night
    Prelief w/everything
    Now recovering from acute pancreatitis

    Currents treatments that help somewhat:
    Heating pad
    Hot baths
    Ice
    Being VERY still while lying down with legs elevated

  • #2
    So sorry to hear that, Katie! I hope the pain pump will give you some relief and fast. I don't know much about it either but I do know that it is very painful. I hope you have a very fast recovery.
    Saying a prayer for you.
    Sandra
    Link to the patient information, everything from What is IC? to Disability
    http://www.ic-network.com/patientlinks.html

    American Urological Association Clinical Guideline
    Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
    http://www.auanet.org/content/guidel...ent_ic-bps.pdf

    Comment


    • #3
      I'm very glad you went to the hospital so you'll get adequate treatment. I hope you feel better soon.

      Warm hugs,
      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment


      • #4
        Katie: Hope you heal fast. Take care and let us know how you are doing.

        Comment


        • #5
          Katie, Thats awful!!! So glad you went to the hospital though. I hope you heal soon.
          Cindi


          Gelnique for frequency/urgency - works great
          Macrobid after sex
          Prilosec, continuous birth control pills
          synthroid .088mg, mucinex-d, restasis

          Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

          Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

          IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
          AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
          AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
          Great treatment flowchart on page 19 of the pdf

          Comment


          • #6
            in hospital

            Katie,
            I'm sorry you are having so much pain, but glad you're in the hospital and that they gave you a pain pump.

            Feel better soon,
            Laurie

            Comment


            • #7
              Hi, Katie ~
              I'm sorry to hear about your painful situation, but so glad your in good hands to get things under control and start healing. I, also, know nothing about pancreatitis.

              Prayers that you'll soon be feeling well,
              Never heard of IC til suspected....Never knew so many suffer from it. Praying for a cure. I've found answers...so can you...keep the hope.

              11/2007 IC Symptoms began during recovery of surgery for bladder susp & hysto: painful/urge/freq urination up to 50 times a day, pain walking, even water hurts.
              8/2009 Susp IC; 1/2010 Treatment began; 2/2010 Diag PFD, PT, Surg remove mesh; 5/2010 Surg, 2nd bladder repair, vag vault/sm int prolapse repair, IC confirmed in surg; 7/2010 Diag Candida Esophagitis, Gastritis, Diviticulosis, Gallstones,
              8/2010 Surg gallbladder
              TREATMENTS (updated 4/15)
              IC Diet since 8/2009 (Able to vary 4/15)
              Heparin/Lidocaine/Bicarb/Kenalog Instills 1xDay
              Aloe Vera Capsules, (2) 2xDay, Loratadine 1xDay
              Pantoprazole, Prelief, Pyridium up to 3xDay, Premarin Cream 3xWeek
              *DISCONTINUED since feeling better: Celexa 10mg daily*, Fiber supp*,
              Gabapentin 12/2011 worked well *, Macrodantin 100mg after instill*, Probiotics*, PT-PFD*, Valium Vag Suppositories: Cyclo/diaz/lido, 10/5/62.5mg *
              PROB MEDS: Elavil, up to 50mg 1/2011 ret&hbp, Urelle ret, Vesicare ret

              Comment


              • #8
                I'm also unfamiliar with pancreatitis, and from your description I hope I never have any personal experience!

                Have they been able to get your pain under control?


                Vicki
                "The happiest people don't necessarily have the best of everything; they just make the best of everything they have."

                Comment


                • #9
                  katie ive heard about pancreatitis and am sorry you are going through that at the moment as well as IC.im glad you are finally getting the pain pump.get well soon.praying for you
                  Newly IC diagnosed as of February 2011.

                  Medications I'm on that seem to work:
                  Zoloft- one once a day
                  Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

                  Failed Meds:
                  Elmiron-after 4 months,digestive side effects got to be too much
                  tramadol-allergic
                  DMSO treatments(5-6)
                  probiotics

                  THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
                  AROMATHERAPY-candles,incense
                  Village Naturals Aches and Pains Peppermint Bath Salts
                  Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

                  ACUPUNCTURE/HERBS
                  Significant pain relief so far.

                  MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
                  ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
                  ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

                  Add me on facebook Angela Hasic

                  ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
                  Lord, make me an instrument of your peace;
                  where there is hatred, let me sow love;
                  when there is injury, pardon;
                  where there is doubt, faith;
                  where there is despair, hope;
                  where there is darkness, light;
                  and where there is sadness, joy.
                  Grant that I may not so much seek
                  to be consoled as to console;
                  to be understood, as to understand,
                  to be loved as to love;
                  for it is in giving that we receive,
                  it is in pardoning that we are pardoned,
                  and it is in dying [to ourselves] that we are born to eternal life.

                  Comment


                  • #10
                    Thanks everybody

                    The pain pump is great and I' m getting dilaudid which works so much better for me in IV than in pill form. And something else for pain I'm doing ok but still having a lot of pain. They changed my AB's to something I can't remember but hopefully it will work. The bladder infection moved to my kidneys so I'm pretty sick. I'm glad I came. it didn't take too much talking on my husbands part (usually he has to convince me) but I had been crying most of the morning due to pain. So I didn't put up much of a argument. All the nurses have been great and I'm in great hands. Although thru all this STILL my bladder hurts. Wow, IC is persistent.
                    Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
                    Lexapro-20 mg
                    Aciphex
                    Ambien-as needed
                    Percocet-7.5 up to 3 per day as needed
                    Valium-10 mg x2 per day
                    Phenergan-1 at night
                    Prelief w/everything
                    Now recovering from acute pancreatitis

                    Currents treatments that help somewhat:
                    Heating pad
                    Hot baths
                    Ice
                    Being VERY still while lying down with legs elevated

                    Comment


                    • #11
                      I am so sorry for your pain but, at least you are in the hospital getting treatment.

                      I go to the hospital for one of my many surgerys, Wednesday I have to have nerve repair on my right elbow. Doctor says I won't be able to use it for 3 months. If the surgery is a success then I will have my left elbow done and then my neck repaired.

                      Anyway, I hope you feel better real soon, keep in touch and let us know how things work out for you.
                      <center>
                      <a href="http://s1086.photobucket.com/albums/j441/linda5552/?action=view&amp;current=Picture005.jpg" target="_blank"><img src="http://i1086.photobucket.com/albums/j441/linda5552/th_Picture005.jpg" border="0" alt="Photobucket" ></a>
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                      • #12
                        I hope you are better very soon. So sorry but happy you are getting help. I wonder what tests they took to find Pancreatitis? With your bladder infection moving into your kidneys (Thank GOD you are in a hospital) I wonder if all are related. I went into the hospital for 5 days. At first I felt there was little hope they could help me. I left feeling 100% better. I think the antibiotics they main lined into me helped greatly. Will keep you in my heart & Prayers. Hugs, Ziggy

                        Comment


                        • #13
                          in hospital

                          Hi Kadi,
                          I hope you're feeling better today.
                          Laurie

                          Comment


                          • #14

                            Comment


                            • #15
                              Ive had pancreatitis a couple of times back in 06. I had elevated amalyse and lipase numbers. All my testing came back negative for cancer, gall bladder problems, stones. So I was dx with drug induced pancreatitis and I can relate with you on how painful it is! Most painful thing ever!!! I found out why I had mine was because I was taking lots of different meds and those can cause pancreatitis although I'm not sure how. I hope you will be feeling better soon
                              Diagnosis: IC '09, vulvodynia '10, fructose intolerance '06, GERD '06, fibromyalgia '09, IBS '10 and TMJ '09, PCOS '11, genital herpes '12

                              Current Meds: Butrans patch, welbutrin, lamictol, geodon, xanax, aldactone, linzess, topimax, trazadone and diflucan as needed.

                              Meds tried before: Elmiron, elavil, antibiotics, welbutrin, cymbalta, prozac, nerve blocks, instills, nyastatin, flexerol, percocet, naproxen (which was what I was given for pain for years).

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