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I started having severe upper abdominal pain at about 3 this morning. I'm now in the hospital w/pancreatitis. I don't even know anything about it exept that it is VERY painful. They are getting ready to put me on a pain pump, thank God!!!
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Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
Lexapro-20 mg
Aciphex
Ambien-as needed
Percocet-7.5 up to 3 per day as needed
Valium-10 mg x2 per day
Phenergan-1 at night
Prelief w/everything
Now recovering from acute pancreatitis
Currents treatments that help somewhat:
Heating pad
Hot baths
Ice
Being VERY still while lying down with legs elevated -
So sorry to hear that, Katie! I hope the pain pump will give you some relief and fast. I don't know much about it either but I do know that it is very painful. I hope you have a very fast recovery.
Saying a prayer for you.
SandraLink to the patient information, everything from What is IC? to Disability
http://www.ic-network.com/patientlinks.html
American Urological Association Clinical Guideline
Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
http://www.auanet.org/content/guidel...ent_ic-bps.pdf -
I'm very glad you went to the hospital so you'll get adequate treatment. I hope you feel better soon.
Warm hugs,
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
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Katie: Hope you heal fast. Take care and let us know how you are doing.Comment
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Katie, Thats awful!!! So glad you went to the hospital though. I hope you heal soon.Cindi
Gelnique for frequency/urgency - works great
Macrobid after sex
Prilosec, continuous birth control pills
synthroid .088mg, mucinex-d, restasis
Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil
Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.
IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
Great treatment flowchart on page 19 of the pdfComment
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in hospital
Katie,
I'm sorry you are having so much pain, but glad you're in the hospital and that they gave you a pain pump.
Feel better soon,
LaurieComment
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Hi, Katie ~
I'm sorry to hear about your painful situation, but so glad your in good hands to get things under control and start healing. I, also, know nothing about pancreatitis.
Prayers that you'll soon be feeling well,Never heard of IC til suspected....Never knew so many suffer from it. Praying for a cure.
I've found answers...so can you...keep the hope.
11/2007 IC Symptoms began during recovery of surgery for bladder susp & hysto: painful/urge/freq urination up to 50 times a day, pain walking, even water hurts.
8/2009 Susp IC; 1/2010 Treatment began; 2/2010 Diag PFD, PT, Surg remove mesh; 5/2010 Surg, 2nd bladder repair, vag vault/sm int prolapse repair, IC confirmed in surg; 7/2010 Diag Candida Esophagitis, Gastritis, Diviticulosis, Gallstones,
8/2010 Surg gallbladder
TREATMENTS (updated 4/15)
IC Diet since 8/2009 (Able to vary 4/15)
Heparin/Lidocaine/Bicarb/Kenalog Instills 1xDay
Aloe Vera Capsules, (2) 2xDay, Loratadine 1xDay
Pantoprazole, Prelief, Pyridium up to 3xDay, Premarin Cream 3xWeek
*DISCONTINUED since feeling better: Celexa 10mg daily*, Fiber supp*,
Gabapentin 12/2011 worked well *, Macrodantin 100mg after instill*, Probiotics*, PT-PFD*, Valium Vag Suppositories: Cyclo/diaz/lido, 10/5/62.5mg *
PROB MEDS: Elavil, up to 50mg 1/2011 ret&hbp, Urelle ret, Vesicare ret
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I'm also unfamiliar with pancreatitis, and from your description I hope I never have any personal experience!
Have they been able to get your pain under control?
Vicki"The happiest people don't necessarily have the best of everything; they just make the best of everything they have."Comment
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katie ive heard about pancreatitis and am sorry you are going through that at the moment as well as IC.im glad you are finally getting the pain pump.get well soon.praying for youNewly IC diagnosed as of February 2011.
Medications I'm on that seem to work:
Zoloft- one once a day
Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)
Failed Meds:
Elmiron-after 4 months,digestive side effects got to be too much
tramadol-allergic
DMSO treatments(5-6)
probiotics
THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
AROMATHERAPY-candles,incense
Village Naturals Aches and Pains Peppermint Bath Salts
Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion
ACUPUNCTURE/HERBS
Significant pain relief so far.
MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
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***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***
Add me on facebook Angela Hasic
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Lord, make me an instrument of your peace;
where there is hatred, let me sow love;
when there is injury, pardon;
where there is doubt, faith;
where there is despair, hope;
where there is darkness, light;
and where there is sadness, joy.
Grant that I may not so much seek
to be consoled as to console;
to be understood, as to understand,
to be loved as to love;
for it is in giving that we receive,
it is in pardoning that we are pardoned,
and it is in dying [to ourselves] that we are born to eternal life.
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Thanks everybody
The pain pump is great and I' m getting dilaudid which works so much better for me in IV than in pill form. And something else for pain I'm doing ok but still having a lot of pain. They changed my AB's to something I can't remember but hopefully it will work. The bladder infection moved to my kidneys so I'm pretty sick. I'm glad I came. it didn't take too much talking on my husbands part (usually he has to convince me) but I had been crying most of the morning due to pain. So I didn't put up much of a argument. All the nurses have been great and I'm in great hands. Although thru all this STILL my bladder hurts. Wow, IC is persistent.Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
Lexapro-20 mg
Aciphex
Ambien-as needed
Percocet-7.5 up to 3 per day as needed
Valium-10 mg x2 per day
Phenergan-1 at night
Prelief w/everything
Now recovering from acute pancreatitis
Currents treatments that help somewhat:
Heating pad
Hot baths
Ice
Being VERY still while lying down with legs elevatedComment
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I am so sorry for your pain but, at least you are in the hospital getting treatment.
I go to the hospital for one of my many surgerys, Wednesday I have to have nerve repair on my right elbow. Doctor says I won't be able to use it for 3 months. If the surgery is a success then I will have my left elbow done and then my neck repaired.
Anyway, I hope you feel better real soon, keep in touch and let us know how things work out for you.
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I hope you are better very soon. So sorry but happy you are getting help. I wonder what tests they took to find Pancreatitis? With your bladder infection moving into your kidneys (Thank GOD you are in a hospital) I wonder if all are related. I went into the hospital for 5 days. At first I felt there was little hope they could help me. I left feeling 100% better. I think the antibiotics they main lined into me helped greatly. Will keep you in my heart & Prayers. Hugs, ZiggyComment
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in hospital
Hi Kadi,
I hope you're feeling better today.
LaurieComment
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Ive had pancreatitis a couple of times back in 06. I had elevated amalyse and lipase numbers. All my testing came back negative for cancer, gall bladder problems, stones. So I was dx with drug induced pancreatitis and I can relate with you on how painful it is! Most painful thing ever!!! I found out why I had mine was because I was taking lots of different meds and those can cause pancreatitis although I'm not sure how. I hope you will be feeling better soon
Diagnosis: IC '09, vulvodynia '10, fructose intolerance '06, GERD '06, fibromyalgia '09, IBS '10 and TMJ '09, PCOS '11, genital herpes '12
Current Meds: Butrans patch, welbutrin, lamictol, geodon, xanax, aldactone, linzess, topimax, trazadone and diflucan as needed.
Meds tried before: Elmiron, elavil, antibiotics, welbutrin, cymbalta, prozac, nerve blocks, instills, nyastatin, flexerol, percocet, naproxen (which was what I was given for pain for years).Comment
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