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  • Please help with flare up question ASAP

    Hi everyone. I am so glad this forum is here. I mostly lurk, but I post every so often.

    My question is this.. I am having a VERY bad flare with upper and lower abdominal pain and low back pain. The pain is comparable to being in labor.

    I've had a full hysterectomy, gallbladder removed, 2 exploratory laps, and 2 nerve blocks (failed)

    I want to know what I should do/say at the ER to get them to admit me for pain relief. When my pain gets out of control the ONLY thing that helps is IV intervention.

    Please... I need some advice!

    Thank you!!
    Jill

    Diagnosed 2009 w/IC
    Also have IBS, Fibromyalgia, Nerve damage, Brain ischemia w/ possible MS (waiting on diagnosis and looking for a new neuro)

    Medications:

    Welbutrin ~ 300mg
    Klonopin ~ 1mg 2xday
    Premarin ~ .625mg
    Neurontin ~ 600mg 4xday
    Embeda ~ 50mg 3xday
    Aspirin ~ 81mg
    Hydrocodone ~ 10mg 2-3 as needed

  • #2
    Sorry

    I am so sorry that you having so much pain. I too have excruciating pain, I have had a hysterectomy, also appendectomy, ovary removal, there really isnt much left in there. I have had to go the ER for pain relief, but it is was very hard for me to get anything. I am not sure if there is a magic phrase or anything that will get you help. I seem to have a hit or miss kinda luck. I have gone in and had a compassionate Dr. that just really wants to help me with the pain, and others that treat me like a drug seeking junkie...
    I am sorry I couldnt be more helpful. I hope that you feel better soon.

    Kirsten
    Started Vaginal Valium Suppositories April 2014
    Hysterectomy April 2003 (for abdominal pain),Diagnosed with IC August 2003
    Diagnosed with Pelvic Floor Disorder 2004,Had right ovary and fallopan tube removed 2005
    Diagnosed with diverticulosis 2006,Interstim December 2006,Home Instillations 2007-not effective
    Diagnosed with Fibromyalgia November 2007,Appendectomy February 2008,
    Interstim repair December 2008,Removal of the Interstim August 2011,
    6 Hydrodistentions from 2003-2009 Diagnosed with restless leg syndrome March 2014
    Diagnosed with Raynaud's Syndrome November 2013
    Ambien 5mg for sleep.
    Elivil 50 mg at bed
    Lisinopril 20mg in AM
    Effexor 225 mg
    Oxycodone 10 mgs 2 x a day for pain
    Baclofen 20mg 3x a day
    Phenazopyridine 200 mg as needed
    Omeprazole 20 mg at night
    Lyrica 450 mg daily
    Requip .50 mg at night
    Ketorolac 10 mg as needed for migraines

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    • #3
      you need a new treatment plan possibly dmso or rescue treatments.
      I also had severe back pain when I was at my worst flare, for three months, it was torturous
      Last edited by Linda May; 05-18-2011, 03:16 AM.
      <center>
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      • #4
        Have you called your doctor? I think that should be your first move. It may be that you need to be working with a pain management specialist. I don't know if an ER would admit you for pain relief. I just hope they can help.

        Warm healing thoughts,
        Donnaq
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

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        • #5
          The pain clinic sounds like a good idea to me too. My uro sent me to one. They won't treat you like you are a drug seeking junkie.

          Comment


          • #6
            Hi Jill,
            Are you sure you don't have an infection? That's always the first place to look if you've had a sudden spike in pain. Sounds like calling your doctor first is the best idea for now and a referral to a pain clinic for next.
            Wishing you better days soon,
            Kadi

            -------------------------------------------------------------
            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            ------------------------------------------------------


            New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
            Source - Pinterest
            "


            Current treatments:
            -IC diet
            -Elavil 50mg at night
            -Continuous use birth control pills (4-5 periods/year)
            -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
            -Pyridium if needed,
            -Pain medicine at bedtime daily, as needed during the day several times per week
            -Antibiotic when doing an instillation to prevent UTI
            -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
            -Dye Free Benadryl 50 mg at bedtime
            -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
            -Managing stress= VERY important!
            -Fur therapy: Hugging the cat!

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