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I had my diagnosed laproscopapy on friday, ended up at 2 er's on friday night. I couldnt pee once again. First ER dr refused to cath me because I only had 120 ml of urine. I went to another ER and they put a foley cath in until I go back to my uro on tuesday. The first ER dr made me have a panic attack and said she knew nothing about IC and that I was making this all up and there should be no reason why I cant pee. I also was having severe pain from surgery that my pain meds were not taking care of and she said "well what do you expect" I made a formal complaint through the hospital against her and I'm wondering how you do it through the state of ohio. Also is there anything to help with urethral spasms from having the foley cath in. I'm taking ditropan, pyridium and flomax along with percocet, norco, cipro, and motrin 800.
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Diagnosis: IC '09, vulvodynia '10, fructose intolerance '06, GERD '06, fibromyalgia '09, IBS '10 and TMJ '09, PCOS '11, genital herpes '12
Current Meds: Butrans patch, welbutrin, lamictol, geodon, xanax, aldactone, linzess, topimax, trazadone and diflucan as needed.
Meds tried before: Elmiron, elavil, antibiotics, welbutrin, cymbalta, prozac, nerve blocks, instills, nyastatin, flexerol, percocet, naproxen (which was what I was given for pain for years). -
HOw are things now? Praying for you. -
I dont think your overacting at all , regardless of whether or not this doctor had heard of IC is irrelevant , she had no right to treat you so badly, I hope things have gotten better for you and I hope she was properly disciplined .
LaurenComment
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I only had the foley in for a day and i decieded to take it out against my dr's orders and I could pee again. Prolly about a week later I took percocet again and was unable to pee, this time only overnight. So im assuming that the percocet made me not be able to pee so im not going to take it anymore. After that surgery I had a cysto with hydro last monday and they gave me norco and it hasnt cause retention issues or anything. I'm feeling much better
Diagnosis: IC '09, vulvodynia '10, fructose intolerance '06, GERD '06, fibromyalgia '09, IBS '10 and TMJ '09, PCOS '11, genital herpes '12
Current Meds: Butrans patch, welbutrin, lamictol, geodon, xanax, aldactone, linzess, topimax, trazadone and diflucan as needed.
Meds tried before: Elmiron, elavil, antibiotics, welbutrin, cymbalta, prozac, nerve blocks, instills, nyastatin, flexerol, percocet, naproxen (which was what I was given for pain for years).Comment
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spasms
I use valium for my spasms, it really helps. It is couldy to me and bumms me out if I take alot but it helps a lot. Im getting a trial of a superpubic cath in Sept.
I am blessed to have an Indiana Pouch now
IC since childhood, finally diagnosed at 31 yo
PFD/Pelvic Pain,SI joint and LBP
Low Back Pain s/p spinal fusion at 19 with more nastiness in back
Hydrodistension 2001, 2005, 2011 w capsacian, 2011 with botox/ super pubic tube
Interstim trial and removel 2002,C-Section 2007 and 2010, Post Partum Depression, post partum hypertension, Idopathic hypothalmic amenorrhea
Radical Cystectomy with Indiana Pouch 2/3/12--->multiple complications and revision of ureters in pouch due to a giant ball of scar tissue in 8/12, occasional pylo, L kidney small and scarred, low flow
Hysterectomy 2/3/12 w one ovary removed
Dry Eyes
L radical nephrectomy 1//3/14 after a long "what if " the conversation, kidney working 4 %, path said full of absesses
Still have issues, still take meds.
I have worked some, been doing pilates, just got a post masters in nursing, learning to pace myself.
Learning things I can't do, learning things that I need to take a LONG time to master and regain myself, but mostly just so happy to be bladder free.:
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