Ugh my IC is soooo bad. At least recently I have not been very depressed at all, surprisingly, I'm just scared. I see a great specialist and he is going to look in my bladder, but he warned me treatment won't be easy. There's a decent chance he'll take my bladder out.
I just want to be better!!! I sleep a lot. I'm 23, but it's insanely hard for me to get out and do things. I don't work anymore. The doctors and nurses I see keep asking me to be patient, be patient, but I hate that!!!! I have had IC this severe for almost a year now!!! Pain every single day.
And, my medicines cause me crazy side effects. The doctor knows about these, but we agreed that I should stay on them. I tried to go down once and my body actually broke out in hives and I had really bad medical problems (went to the ER of course), because it could not handle the pain and symptoms. Anyways I'm sleepy, can be out of it, one makes me tremor. I was totally embarrassed at the mall last week when I could barely scribble out a check. The cashier was really sweet though, just smiling and waiting patiently. Oh! And the nausea!!! Gross.
I realize when I see my friends my entire life has been interrupted with the nuances of IC. Everything, even a trip to the store, can become this HUGE deal. I feel so out of touch with reality/the world. Anddddd, this great guy and I have gone on several dates but I don't know if it will end up anywhere. I'm starting to get too sick.
I really really hope the doctor keeps his promise to take my case more seriously and urgently. I'm afraid of what the medicines are going to do to me if the "watch and wait" approach continues. I had one medicine that caused me severe mental symptoms and I ended up having amnesia, completely forgetting 2 1/2 months of my life!!!!!
I'm so scared of not getting better. Of nothing being done. I'm not hopeless yet!!! There are more things that can be done but the treatments just take soooo long to put together I've ended up being this waste of a human being trying to hang on a little bit longer. It's depressing (though like I said earlier, picking up some peaceful hobbies like painting, piano playing, reading books I never would have read before, etc. seems to help the depression a lot).
Any advice on how to wait without freaking out? I get so miserable. I can't even be comfortable. My IC is really hard to treat. Oh, and a new thing is that since my IC isn't getting better my pain doctor thinks I'm lying about it to continue seeking drugs and has labeled me a "drug seeker." Last month I had to go into withdrawal before I could get help! I am seeing a new doctor on Monday and am praying they'll help me! K, that's my vent.
I just want to be better!!! I sleep a lot. I'm 23, but it's insanely hard for me to get out and do things. I don't work anymore. The doctors and nurses I see keep asking me to be patient, be patient, but I hate that!!!! I have had IC this severe for almost a year now!!! Pain every single day.
And, my medicines cause me crazy side effects. The doctor knows about these, but we agreed that I should stay on them. I tried to go down once and my body actually broke out in hives and I had really bad medical problems (went to the ER of course), because it could not handle the pain and symptoms. Anyways I'm sleepy, can be out of it, one makes me tremor. I was totally embarrassed at the mall last week when I could barely scribble out a check. The cashier was really sweet though, just smiling and waiting patiently. Oh! And the nausea!!! Gross.
I realize when I see my friends my entire life has been interrupted with the nuances of IC. Everything, even a trip to the store, can become this HUGE deal. I feel so out of touch with reality/the world. Anddddd, this great guy and I have gone on several dates but I don't know if it will end up anywhere. I'm starting to get too sick.
I really really hope the doctor keeps his promise to take my case more seriously and urgently. I'm afraid of what the medicines are going to do to me if the "watch and wait" approach continues. I had one medicine that caused me severe mental symptoms and I ended up having amnesia, completely forgetting 2 1/2 months of my life!!!!!
I'm so scared of not getting better. Of nothing being done. I'm not hopeless yet!!! There are more things that can be done but the treatments just take soooo long to put together I've ended up being this waste of a human being trying to hang on a little bit longer. It's depressing (though like I said earlier, picking up some peaceful hobbies like painting, piano playing, reading books I never would have read before, etc. seems to help the depression a lot).
Any advice on how to wait without freaking out? I get so miserable. I can't even be comfortable. My IC is really hard to treat. Oh, and a new thing is that since my IC isn't getting better my pain doctor thinks I'm lying about it to continue seeking drugs and has labeled me a "drug seeker." Last month I had to go into withdrawal before I could get help! I am seeing a new doctor on Monday and am praying they'll help me! K, that's my vent.

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