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Ok my IC is getting worst as time goes by. The nocturia is just awefull. I rarely sleep. I heard of an in-law having major bladder problem and requiring a catheter with a collection bag attached to her ankle to go about her daily duties (employment leisure). Im wondering if anyone heard of this or uses one. My particular problem is a night. I dont know what the item is called but I was wondering if uro's let IC patients with severe nocturia sleep with a catheter inside them at night with a collection bad on them to avoid having to get up and urinate?-thanks
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Diagnosed with IC October 2009- through bladder biopsy (no glomerations or hunners ulcers found, just irritation)
I have moderate-severe IC
Currently stopped taking all medications due to pregnancy -
I think that's called a Foley and I had one in for a few days with my open heart surgery and then for 10 days when I was hospitalized with pneumonia
and a collapsed lung 2 weeks after surgery.
To my surprise,my bladder handled that with no problems. -
I had a foley catheter inserted for three weeks following a prostate procedure. It lets you sleep wonderfully as you have no sensation that you are peeing. I had a 500 ml bag and had to empty it a couple of times a night. I was able to wake up briefly to check how full the bag felt. They also have larger bags (1000ml and even 2000ml) for bedside use, but the 500ml bag is as large as you would want to carry around strapped to your leg in the day.
I have never heard of anyone using a foley repeatedly on just a nightly basis. I think it might cause problems if used repeatedly, long term. Also, a foley costs about $12, and they are not reusable, as you deflate the balloon that holds it inside your bladder, by cutting off the tube stopper. It takes a bit of nerve to do it the first time yourself as the path to the bladder is about 12 or so inches and you have to push the tube in past the opening of the bladder and then inflate the small balloon that anchors the foley in your bladder, with a plastic syringe of distilled water.
I guess if you were in desperate need of sleep it could be a last resort solution.
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I don't know if there are re-usable foley catheters available. The balloon can also be emptied using a syringe. You might want to discuss this with your doctor.
DonnaStay safe
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Anyone who says something is foolproof hasn't met a determined foolComment
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Catheter
So yes, it is a foley. So I don't think a Uro is going to let you cath yourself before bed and then take it out b/c the risk of infection is high. You can try bladder installations with lidocaine/bicarb and Heparin which I do nightly to help me fall asleep with my ambien and then I only get up a few x a night. I am also trying a super pubic catheter for a trial to see if my bladder is ready to come out. I know how horrible the nocturia is....what else have you tried?
I am blessed to have an Indiana Pouch now
IC since childhood, finally diagnosed at 31 yo
PFD/Pelvic Pain,SI joint and LBP
Low Back Pain s/p spinal fusion at 19 with more nastiness in back
Hydrodistension 2001, 2005, 2011 w capsacian, 2011 with botox/ super pubic tube
Interstim trial and removel 2002,C-Section 2007 and 2010, Post Partum Depression, post partum hypertension, Idopathic hypothalmic amenorrhea
Radical Cystectomy with Indiana Pouch 2/3/12--->multiple complications and revision of ureters in pouch due to a giant ball of scar tissue in 8/12, occasional pylo, L kidney small and scarred, low flow
Hysterectomy 2/3/12 w one ovary removed
Dry Eyes
L radical nephrectomy 1//3/14 after a long "what if " the conversation, kidney working 4 %, path said full of absesses
Still have issues, still take meds.
I have worked some, been doing pilates, just got a post masters in nursing, learning to pace myself.
Learning things I can't do, learning things that I need to take a LONG time to master and regain myself, but mostly just so happy to be bladder free.:
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I just got out of the hospital a few days ago and had been in for nearly 2 weeks. I was in for multiple problems, flare ups of several autoimmune disorders tend to hit me all at one time. While I was there I received a lot of pain medications and steroids which I believe helped break the pain/inflammation cycle. I also had a foley in for a week and a half. Sometimes that can be irritating, cause risk for infection, and can lead to more spasms, but I did really well. Just allowing my bladder to "rest" for a while really made a difference. I wouldn't say I'm in remission, it's a bit early for that and I had some pretty bad spasms and irritation this morning, but overall my bladder does seem better.
I wouldn't recommend it for long-term though because the risk for infection is just not worth it. Mine stayed in that whole week and a half, which is better than d/c'ing it and reinserting it on a daily basis.
When Bob mentioned how far it has to go in, he is speaking of males. Men we expect at least 8" insertion because of where it has to go. Women are typically just a couple of inches. Another thing with men is that we often meet resistance in cathing because of enlarged prostate. When I first became a nurse yrs ago I learned to elevate the head of their bed to bring them to an almost-sitting up position. It somehow moves the prostate to enough of a different position in order to allow the catheter to pass through.
Most urologists probably won't recommend doing an indwelling catheter but every patient is different so all you can do is ask your doctor and find out if it's the right option for you.(formerly DonnaRenee1)
Diagnoses: IC, fibromyalgia, inflammatory arthritis, connective tissue disease, reynaud's, APS, (the lupus anticoagulant, also known as "sticky blood syndrome")
Meds: low molecular weight heparins, synthroid, methadone for pain, tizanidine, cymbalta, pyridium plus, urelle, phenergan for nausea, ambien, lisinopril, norvasc, plaqenuil for arthritis, and over the counter Prelief
Treatments: DMSO, occasional hydrodistentions, hot baths, strategically placed heating pads and ice packs, TENS unit, and everything from pity parties to prayer.
I have lots of support from my family. My husband and my parents are amazing! I have a wonderful daughter who also has IC, and she has given me 2 precious granddaughters. They are my heart and soul! Thank you God for my family!Comment
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I would be very leary of this due to the infection risk. I use to do the bladder instillations and they did help some with the pain, but I ended up with way too many UTI's, one that lasted over 5 months, I could not get rid of it. That was the end of my cathing days. I will not let anyone Catheterize me unless it is an emergency like if I cannot pee, or if I need to have a 8 hour surgery or something. Other than that, NO WAY!! When you have had to live with a UTI for 5 months that wont go away due to being cathed, you learn to be reserved about what you let doctors do to ya. That is just me though.
JenComment
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