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Ic and RA taking Remicade

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  • Ic and RA taking Remicade

    I have had Ic for overr 20 years and the last 10 it has been pretty much okay, then I hit menopause and needed added vaginal estrogen and that hleped. I have been on methotrexate and enbrel for 11 years for my Rheumaoitd arthritis, it has stopped working the enbrel that is, so dr switched me to Remicade, I could feel it bothering my bladder as I had the iv infusion for over 3 hours. On day three after it by the worst flare I have ever had. I can not say for sure it was the remicade but becasue one of the side effects can be bladder infections I assumed it was from that.
    The dr disagrees.
    Has anyone else used remicade while having IC?
    Thanks
    Becky

  • #2
    Not remicade but I'm on Plaquenil for inflammatory arthritis. Not sure if it's what's irritating my IC or just stress. So hard to tell!
    (formerly DonnaRenee1)


    Diagnoses: IC, fibromyalgia, inflammatory arthritis, connective tissue disease, reynaud's, APS, (the lupus anticoagulant, also known as "sticky blood syndrome")
    Meds: low molecular weight heparins, synthroid, methadone for pain, tizanidine, cymbalta, pyridium plus, urelle, phenergan for nausea, ambien, lisinopril, norvasc, plaqenuil for arthritis, and over the counter Prelief
    Treatments: DMSO, occasional hydrodistentions, hot baths, strategically placed heating pads and ice packs, TENS unit, and everything from pity parties to prayer.
    I have lots of support from my family. My husband and my parents are amazing! I have a wonderful daughter who also has IC, and she has given me 2 precious granddaughters. They are my heart and soul! Thank you God for my family!

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    • #3
      I'm on Remicade for Ulcerative Colitis. My bladder has never been great (since diagnosis) but I have not noticed mine getting worse with Remicade. I've had 4 treatments now. So sorry this is happening to you!
      Conditions:
      IBS 4/04; IC 8/05; Vitamin B-12 Deficiency 7/06; Asthma 9/06; Citrus, MSG, Sulfate/Sulfite, Nitrate/Nitrite, Sodium Benzoate Allergy diagnosed 9/06; Fibromyalgia 6/07; Pelvic Floor disfunction 2007; Hysterectomy 10/08; Fallopian Tube Cyst removed 5/10; Chronic Diarrhea since 12/10 ; Ulcerative Colitis 4/12

      Medications
      Elmiron 3x day
      Trazadone at bedtime
      Tramadol as needed for pain
      Monthly B-12 injections
      Continuous Birth Control (even though I had a hyst, to control cysts)
      heating pad, hot epsom salt baths, strict IC diet
      Interstim implant 9/11
      Ulcerative Colitis Meds - Remicade, Azathioprine, Lialda, prednisone several times a year

      Failed Bladder Treatments
      Lyrica, Elavil, Detrol, Detrol LA, Ditropan, Sanctura, Flomax, Prelief, Pyridium & Urelle (allergic!), Lidoderm patches, long term antibiotics - Macrobid and others, instillations (ouch!), CystaQ, pelvic floor therapy, fulguration, bladder injections, bladder stretching

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