ELMIRON AND beyond

[bigred]

I took Elmiron for over 20 ;years. I have terrible eye sight. I have macular degeneration along with blurred vision, can't read without glasses. Can not see anything up close without glasses. Have real problems with low lights. I have glasses for long distance. My eyes are really bad and it...

[ICGamer]

Currently in a flair, trying to ween off caffeine permanently but as the title suggests, sometimes my bladder feels very itchy. Tested for a UTI and nothing found.

[ICGamer]

Does anyone else here have Trigeminal Neuralgia as well?

[fany]

I'm in France and it's very difficult to get information about the dangers of Elmiron.
I would like to know if having it in instillations is less dangerous for the eyes than in the usual way (tablets).
Thanks for your help.

[BillB]

I am a man in my mid forties. For the past three weeks I have been feeling a persistent urge to urinate that doesn't go away after urination. There is no pain or blood. I've had an ultrasound of my bladder and prostate. It found that the prostate's "central zone is slightly prominent in size, and...

[JTA1945]

I am not sure what topic to put this under but here goes.

I am passing this on so that you all can be better informed on the Maderna covid vaccine. Early last week I checked with my Urologist and my primary care physician as to whether I should get vaccinated since I have IC and am diabetic....

[ICGamer]

I recently experienced a flair and I am noticing I am having more perineum area tightness and pain. I am going to talk to my PT in a couple days about this, but is this part of IC and does anyone have any tips for making it less bad? Also, what type of doctor is most helpful? Thank you.

[JTA1945]

I am new to the forum but not IC. I began having problems in 2013 and the attacks were first diagnosed as UTI. Then after consults with several doctors it went from Glucose intolerance to Prostatitis. Not until 2020 did a doctor look at my bladder and diagnose me with IC/Hunners Lesions. With Covid...

[ICGamer]

I was lucky to have a few months without pain *if I remember correctly* then on Sunday after one too many acidic beverages, I thought I had a UTI. I tested positive at home, then had to wait until today to find out it was not a UTI, and my Interstitial Cystitis came back. I think the thing I learned...

[PianoBassGirl]

So I have records from my old PCP showing that I started complaining about my bladder at age 6, I am only 35 now. It has been a problem since childhood and gotten worse and worse every month, every year, I need serious intervention. Now I suspect Bladder outlet obstruction which I didn't even know existed,...