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  • FanneRobby
    started a topic Online dating

    Online dating

    What are your thoughts on online dating? Have you tried it before?
    I hear online dating is pretty crazy although my cousin met his life locally online. It does work for some people but for the majority it doesn't work at all. I don't know for me but I would probably try online dating if I'm really...
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  • I got a removal and Indiana pouch but two months later the frequency is back

    I’m so stressed, all my IC symptoms were completely gone for two wonderful months after the surgery and suddenly, when I arrived back home in Seattle, they returned but only in my urethra. Burning and feelings of needing to pee for hours even though I don’t have a bladder. It’s so hard to sleep....
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  • Which Aloe best for gut health and constipation

    I am looking into getting some aloe also to help calm my guts (Miralax ripped them apart when I took it for constipation) and as a replacement for Elmiron (or something for Elmiron-too many choices and I'm too confused as to what to choose). Also to treat medication constipation. I was wondering why...
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  • Braedley
    started a topic Grapefruit? Supposedly alkaline

    Grapefruit? Supposedly alkaline

    Has anyone had success with grapefruit?? I haven't attempted it in decades but miss it dearly. A health professional said it's actually an alkaline fruit, not acidic like oranges but I'm not sure.
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  • Essential oils and IC, anyone use or ingest them?

    A dear friend of mine is trying to help me and thinks that the Young Living brand of essential oils and the many various oils they make to ingest will help me. I was just wondering if anyone had used essential oils for IC? What works, what doesn't? Also, has anyone tried the Vitality line of oils...
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  • Zigs87
    started a topic Labour or c section

    Labour or c section

    Hello

    im looking for advice please from anyone who has gone through childbirth with IC. I have IC and PFD. I struggled with incontinence for years before going the other way and suffering with pain caused by overly tight pelvic floor. I’m concerned about what labour would do to my pelvic...
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  • Judyt1991
    started a topic Success!

    Success!

    I’m 78. Always been very active and healthy. I was diagnosed October 2015. burning and frequent urination and severe pelvic pain. Diet, physical therapy, hormone cream, nothing helped. Then kidney stones and finally surgery to remove. I was put on Potassium Citrate to hopefully prevent more stones....
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  • Does it make sense to get a Cystoscopy?

    A urologist recommended a cystoscopy, which I haven't yet undergone... if anything shows up he might prescribe me Elmiron.

    I'm just wondering if it would hurt to try more alternative natural treatments (supplements and diet) before doing a cystoscopy... or might that mask the bladder inflammation...
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  • Has Long-Term Elmiron actually cured anyone?

    When I say cured I mean effectively put into remission without noticeable symptoms.

    I hear conflicting stories, some seem overjoyed with it and that it's worth the low ocular risk and monthly expenses; others not so much.

    The question is just that once you start it, do you...
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  • DNA program and antibiotic flares

    Hello friends,
    I have been working with my doctor and Microgen to do the DNA therapy and break up biofilms to target trapped bacteria in the bladder wall behind the biofilm. I am on round 7. Along the way much has been revealed as we go layer by layer. It is hard sometimes when it looks like we...
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